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Tbhof

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About Tbhof

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  1. Jabsdb I hope your daughter is okay and that whatever it is is slow progressing Hugs!
  2. Judy how did your disease progress? What were your signs when you were younger and where did it go from there?
  3. Some labs say 1:80 is a negative result. My primary doctor says its insignificant. I'm just not sure what to think!!
  4. Hi everyone. I went back to my doctor to redo the ANA as I wasn't sure what method was used. It came back 1:80 speckled. ENA was also run. In that, Scl-70 and Ribonucleoprotein (RNP) came back negative as well as for Sjogrens. Can anyone tell me what speckled means? What a low reading may mean? Thank you!
  5. Amanda when your fingers went pale was it just tops or undersides or all the way around? All the pics I see online show the backs of fingers white. The tops of my fingers go pale but the backs look totally normal
  6. If fingers go pale, just the tops of hands, when cold, with no other symptoms, is that likely to be more of a cold intolerance?
  7. I'm glad I made you chuckle Amanda :-) We can all use a good smile now and then. Of course I hope it's not scleroderma but I'll take the membership! My marks are brown and they are on my palms under my thumb area just above my wrist. They can be painful at times. I have no brown on my forearms but the undersides of my forearms get these weird creases in them when there's been pressure. Such as holding my baby. The skin doesn't feel different or look different there though. How quickly did the brown marks come for you? Was the texture different?
  8. I have questions about Raynaud's. Does the entire finger change color? Meaning the top and back and all the way around? My fingers go pale but only the tops of them. The backs of the fingers look normal.
  9. Thank you for your caring response Shelley. If I could give you a hug, I would! I too haven't found much on patches on palms... Which only adds to my confusion. There's something weird going on that's for sure.... Just want to figure it out and what it means. Do you have limited sclero? How are YOU doing? Enough about me!
  10. Thanks again for taking the time to respond Shelley. I feel a bit better than a few weeks ago, but obviously still worried about what's all going on. They spots on my palms are on either side, but the few on my back are not symmetrical. The skin on my palms is thickened and more textured than my normal skin, but also more brown in color too. There is pain off and on, but thankfully it's been less recently. I hope that my appointment with the rheumatologist comes soon, to sort it out. Waiting is hard!! I feel like I'm a bit obsessed with looking at my hands watching for any changes.
  11. Can someone give a description of these? Is it just joints that crack?
  12. Thanks for the great info Shelley! When you say systemic doesn't cause discoloured skin, you mean the skin that gets tight and thickened looks "normal color" but tight? In Morphea, is brown a common Color? Or more likely purple? I've read so many different things. My patches are brown on palms, and brownish on my back. It's hard to get a good look as its on my spine.
  13. Hi Amanda. I'm guessing that is you in the video? :). Nice to meet you! Thanks for sending me that link. When people refer to "tight" skin, is that skin that can't be pinched? Is it the same as "thickened" skin?
  14. I should add the patches are also painful off and on. Not on my back. Just the ones on my palm
  15. Also..what would you consider "red flags" in scleroderma?
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