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About dimarzio

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  1. dimarzio

    Left Atrial Enlargement on ECG

    It seems from what I read, that this is commonly a result of high blood pressure. What are your readings like? If this is the case, blood pressure medication and a healthy diet and lifestyle is helpful. Plenty of exercise and avoiding alcohol and tobacco products. Healthy living will help to prevent heart attacks and strokes, though this is the case for everybody really.
  2. dimarzio

    What’s up with this pain in my chest?!

    I recommend lots of exercise and heavy breathing then Cathy. Seriously though, I get a lot of cramping in my chest, especially so in colder weather. I too am finding that plenty of aerobic exercise and stretching helps.
  3. dimarzio

    Face and sinus issues.

    I take beconase ( beclometasone dipropionate) for my sinus issues. They occurred long before my SSc was diagnosed, but I get the feeling that they may be related. My general practitioner originally diagnosed Rhinitis, hence the beconase prescription. It does help though, but most of my pain is in my ears. Apparently, the build up in the tubes from my nose to my inner ears is putting pressure on my eardrums. Several other brands of cortisoid nasal sprays may of course be equally effective.
  4. dimarzio

    Newly diagnosed with scleroderma

    Treatment is mainly symptom led, so we would need to know what these are before any of us are able to make any meaningful comment. I do hope that your symptoms are not too bad though.
  5. Had my jab 3 weeks ago Jo. I booked in using the over 65 process and they said that because I was under 65, they had to give me a different one. I have been having flu jabs since 2010 or 2011 and have never got the flu. However, it was around 2010/11 I first started noticing what turned out to be circulation problems and Scleroderma (diagnosed 2015). It makes you wonder doesn't it?
  6. I too had really bad constipation and bloating. I thought it was related to my scleroderma, bur it turned out to be the effects of certain drugs I had been prescribed. When I stopped taking them, my whole digestive system quickly returned to normal.
  7. dimarzio

    What does lung involvement feel like?

    Hi, I've had that feeling of wanting to yawn since I was 9 years old (I'm now 60 and it hasn't killed me yet). A feeling like I'm breathing, yet it's not having any effect. I've been told over the years that it's anxiety or my imagination, even though I have not been anxious at all. In fact the only time I have ever been anxious or depressed is during an 18 month period when I was unnecessarily put on anti anxiety medication. My recent lung function tests and echoes have been fine, so it seems like my Scleroderma is limited. I do however have aches in my back, hips, shoulders and legs. I surmise that most of this results from stiffening of the ligaments since my muscles appear fine. I do get a lot of cramping though that is very painful and extremely distressing. When first diagnosed, a lot of my problems did stem from a fear of progression together with the side effects of medication, which seemed to make all of the aches and pains even worse. Since losing a few kilos and increasing my levels of exercise and physical fitness, things have improved quite a lot. Actually exercising the areas where pain is felt is quite helpful and even some physio may be of benefit. My reflux cough has benefited from taking a proton pump inhibitor, together with avoiding spicy food. I find that smoking and drinking alcohol don't help me much here though. Rather than getting anxious, as I did, I found it better to fight this disease. I know it will get me in the end, but I have strived to become as physically active as I can and enjoy life as much as possible for as long as I can. A strong will and a positive mental attitude can and will help considerably. Instead of worrying, try and channel that energy into fighting and making the most of what you have. I wish you the very best in however you chose to deal with it.
  8. Having recently been diagnosed, I would hope that your doctor would arrange for an examination of your upper digestive tract along with a heart echocardiogram, kidney function tests and lung function tests as a minimum. Any other tests may be symptom led.
  9. dimarzio

    7 year old daughter with scleroderma.

    We really need to know a little about the symptoms and tests used in the diagnosis to be able to help you here. If you could provide a little more information, then one of us may be able to offer a few words of wisdom. What is making your poor little girl feel so unwell at the moment? Whilst scleroderma has no cure, a lot can be done to alleviate many of its symptoms.
  10. dimarzio

    Most parents are against teen tattoos.

    Never could understand why people would want to deface their own bodies with these things. Better to go for the temporary ones if you seriously feel the need. A friend of mine is making a fortune removing them with a laser.
  11. dimarzio

    Hi guys, Newly diagnosed and confused.

    Whilst I have no heart or lung symptoms, I have a periodic echocardiogram and lung function tests. This is normal practice where there is a diagnosis of Scleroderma. I too have been perplexed by different approaches taken by the rheumatologist, at times seeming negative and at others, more positive. General aches and pains are not uncommon, typically in the hips and lowerback, but also around other joints and in the neck. Exercise and physio can help a great deal.
  12. dimarzio

    Giving up.

    Live everyday as if it were your last. That's what I'm doing. I will fight this disease for as long as I can. The thyroid issue is pretty easy to fix. The kidney problems need more detail to be able to fix and I'm not sure what to say about the small vessel issue other than that a blood thinning drug might be able to help. Hope it all turns out well for you, but keep on fighting. Dimarzio.
  13. Hi Brenda, I am sorry that you have been diagnosed with Limited Scleroderma. Yes, your digestive problems could be caused by the disease, but there could be other causes too, e.g side affects of many commonly prescribed drugs or simply that our digestive systems can find it more difficult to tolerate certain foods as we get older. As far as collogen is concerned, I would be inclined to leave it well alone if possible since the disease causes an over production of the stuff in itself. Hope this was helpful. Dimarzio
  14. dimarzio

    Cellcept for Sine Scleroderma - Cardiac?

    Immunosuppressants can take some weeks before you have any effect, Regina. For how long have you been on them?
  15. dimarzio

    Cellcept for Sine Scleroderma - Cardiac?

    Whatever else you do, I'm sure that regular exercise and clean living will help. I've certainly found that fighting Scleroderma is much better than giving in to it, though.