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About dimarzio

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  1. Can I suggest this guy? Depending on where you live in Wales, Bristol may not be too far: https://www.nbt.nhs.uk/our-services/a-z-consultants/dr-harsha-gunawardena
  2. From what I know about PIP, it is quite difficult to qualify. However it's easier if you have the right handshake.
  3. GP recommended two squirts up each nostril morning and evening. That was enough to clear the problem in a week or two. I find just an evening dose is sufficient to keep the problem at bay, though if I miss two or three days it does return. I have no side effects whatsoever and know many people who take similar medications with no problems either.
  4. Hi Ronald, I would be very worried about bleach coming into contact with my skin. If the ulcers are open and not healing, I would give Manuka honey a try. It has great healing properties and can help clear infections. I recommended this to a relative with ulcers that would not heal for a couple of years and she said I was talking rubbish and suggesting quack remedies until a specialist on ulcers at the health centre gave her exactly the same advice. Not all Manuka honey is pure, some is mixed with other honeys and sugars. Be sure to get the pure stuff if you do try it.
  5. I had constant pressure from my sinuses through to my eardrums. I've been prescribed Beconase nasal spray, which I've used once a day for about 4 years now. It solves the problem, though it returns if I forget to squirt for 2 or 3 days. My general practitioner was considering whether to investigate further, but when I said I thought it was probably an imuno response, she decided not to bother, having checked that Beconase was okay for long term use (didn't question my comments, agree or disagree though). There are a few different types of this treatment if the one I am using ever becomes ineffective.
  6. Hi George. I was formally diagnosed in Sept/Oct 2015 but had slight GERD for a few years beforehand. The Raynaud's has been there to some extent since around 2010/11, though I didn't recognise it as such and sought no treatment. My skin has been sensitive all of my life and I've never felt comfortable wearing anything other than cotton next to my skin (wool is extremely uncomfortable). The feeling that there is no padding between my skin and bones goes back to around 2010/11 as well, though I think it may well be a lot longer to a lesser degree. I have not been provided with a specific pattern other than the results of my ANA test stating that they "show a strong association with Limited Systemic Sclerosis". The only other symptoms (which all the doctors choose to ignore, having raised it a dozen or more times) are what feels like Raynaud's in my eyes and that I tend to feel faint, unsteady on my feet and easily lose my balance in colder weather. Additionally, I get a lot of cramp in my legs, back, shoulders, abdomen and chest. Doctors continue to ignore these as well. Finally, I have been doing a full series of stretching exercises for about 2 years to improve tightness of the ligaments in my legs, pelvis, groin, back, chest, neck and shoulders. These have considerably improved my flexibility and reduced the (apparently imaginary) pain I was getting from physical activities). I hope this is of help, but my main concern is that none of my doctors take the problems seriously, so I simply make the best of what I have and do as much as I can do for as long as I remain able to. Regards, Dimarzio
  7. George, I have GERD and Raynauds, which you also appear to have, but the comment you made about feeling like you have no underskin tissues and that everything you touch feels like you are touching it with bone is exactly the same as I feel and I have formally being diagnosed with limited systemic scleroderma. From what you say, Scleroderma may well be a possibility, but equally may be dozens of other things too or even a collection of unrelated issues. Sometimes it is best to just deal with the symptoms, whatever the cause is (unless it is clearly identified). As there is no cure fore Scleroderma, that's how it is treated too. I do hope your symptoms improve or that you learn to live with them better. That being said, please try to be positive and try to concentrate on leading life to the full as much as you can. Please don't give up. Even if the worst is confirmed, you can still live a ling and fulfilling life. Dimarzio
  8. That's an interesting study. For me, Scleroderma makes the cold winter months quite a miserable time, but the feeling of wellbeing when the weather warms up is immense. I guess many of us probably feel the same, but of course we are a bit different to the norm. I know that if it gets too warm, that can be uncomfortable, but not as bad as seeing your hands and feet go blue in the cold.
  9. Sounds like a very interesting approach. Will be fantastic news if the trial is successful.
  10. When I was first diagnosed, I had a lot of problems with reflux, difficulty swallowing and food getting stuck in my throat. The swallowing problems actually turned out to be related to the drugs I had been prescribed for my imaginary problems and went away when they realised that the problems weren't imaginary after all and stopped the drugs that they gave me for them. Omeprazole is really helpful with the reflux, though reflux can be exhaberated by caffine, alcohol, nicotine and spicey foods. From digestive perspective, I've also noticed that physical exercise can be beneficial to the overall function of the entire digestive tract.
  11. Hi Doreen, just try to keep your hands warm. I wear thermal lined leather gloves when I go out in the cold, but keeping your hands in your pockets can work well too. Just a minute or two in the cold and it can take ages for my fingers to warm back up. I also find that if I keep the rest of my body warm it seems to help my hands too. In winter I wear a a pair of thermal socks and a sports snood as well as a warm hat. Sometimes I will make an excuse to go to the loo just so as I can dip my hands in a bowl of hot water and those warm air hand driers can be a blessing on a cold day (I even use them to warm my gloves up before putting them back on.) You can also buy battery heated gloves although I haven't tried those yet.
  12. Hi Ronald, When I was first diagnosed, the aches, pains and stiffness were so bad, I was taking little exercise and having sleep problems. When I started to fight back, increase my fitness and force myself to exercise more, my sleep improved considerably. It was a painful process, but one I am glad I put myself through. I normally sleep well, so long as I have been for a walk or done some DIY around the house or for one of my kids. If not, a large glass of red before going to bed usually does the trick ☺️ Increased physical activity may also improve your lung function, though you may, like me need to build up gradually. A sleep specialist told me that more human interaction also tires the mind and helps you to sleep. If you are not getting much of this it might be worthwhile trying to spend a bit more time talking to people.
  13. Preclinical work in mice given EHP-101 revealed anti-inflammatory and anti-fibrotic (scarring) responses, as well as reduced skin thickness and recovery of damaged blood vessels.
  14. Hi Omer Yes it is possible to test positive and have no symptoms or have symptoms appear many years later. If you have no symptoms though, I would have to ask why you were given the blood tests. My first ANA test was done when I went to my general practitioner with Raynauds, although I had been having related problems for nearly a year before they finally realised that my symptoms were not imaginary and that I was not insane. I hope you continue to remain sympom free though. Best wishes, Dimarzio
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