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About Madusa

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  1. On Saturday I was rushed to A and E again, this time with bleeding from the bowel and total loss of control of my left leg, it would hold my weight but refused to move. After an horrendous three days in hospital where no one would take me seriously and them falsifying records I was discharged. Today I went for my appointment with the rheumatologist. I had done my research and wasn't expecting great things, I was wrong! I was scheduled for a 30 minute appointment, I came out 1 hour and 30 minutes later, he listened, asked questions, examined and gave me what he stressed was an initial diagn
  2. It took me an hour to write my post on here, my hands can't use a computer so I have to use a tablet with a stylus......it was the best hour I have spent. I woke up this morning and felt better than I have done in months, the swelling is still there but my joints don't feel as stiff today. I don't know whether its because I final put down in writing what has been happening or that we have a little bit of sunshine here. Thank you, thank you, thank you for being here to reassure and advise on a practical level. To be honest I had looked through quite a few posts on the site before I joined a
  3. Hi everyone,I have not been diagnosed by a scleroderma specialist yet and until I went for a routine check up in February had never heard of systemic sclerosis. Back in September I started suffering with aches and pains in my joints, overdoing it at work I thought so took pain killers and got on with life. Then in November I started with chest pains one afternoon and by evening had been rushed into hospital. After x rays and monitoring and blood thinning drugs, I was let home 3 days later. I then had ct scans, stress echo cardiogram and more x rays and an appointment with a cardiologist in
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