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Keelton

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About Keelton

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  1. Hi Kathy, that is great to hear. I know you said you didn't have any motility changes, I am assuming you have been diagnosed with dysmotility? Also did you notice any changes better or worse in scleroderma symptoms during or after your pregnancy, like a flare up of some sort? The tough thing for me is I haven't been diagnosed yet. I am worried that it will suddenly come on during pregnancy or get worse after. Thanks for the reply!
  2. Hi Judy. It's interesting that your son was diagnosed based on the antibody test and esophageal problems?? Anything else at the time? That's exactly what I have and no where near a diagnosis based on those two things....
  3. I live in New Jersey. I have heard of these medications but I read that they don't help with esophageal dysmotility on the rest of the digestive system.
  4. Thanks for the reply. I can eat most foods with water. But steak and some other foods are bad! My motility test shows that I have very weak peristalsis on my entire esophagus with large breaks of no motility. I am so scared it will get worse but I guess there is no telling. Did you actually have a motility test done? Or you just feel like you have trouble swallowing?
  5. I know this is an old topic, but I am curious if Jennifer, who was concerned about having a positive SCL-70 without symptoms ever did end up being diagnosed with scleroderma? Did you end up having a successful pregnancy? I am in the same boat, positive RNA polmerase and esophageal dysmotilitiy but that is all for now. Really want to try for another baby but scared and would love to know your outcome. Thanks.
  6. Hi Judy, thanks for replying, May I ask what kind of medicine you are taking for your esophageal dysmotilitly? I was told there is nothing that can be done and no medicaton.
  7. I have been diagnosed with esophageal dysmotility and a positive RNA polmerase antibody. I do not have a diagnosis because I do not meet the scleroderma criteria as of now. I am wondering how common it is to have this problem and did your motility issue seem to stay the same or get worse over time? Mine is pretty bad , I have very weak peristalsis throughout the entire esophagus. I can eat most foods with lots of water except for meat. I am terrified at the possibility of it getting worse and not being able to eat, or does anyone end up on a feeding tube?
  8. I am still in the process of getting a diagnosis; at the present time I do not meet the criteria for scleroderma. I have a positive anti RNA Polmerase antibody and esophageal dysmotility. In my heart I believe I have this disease but it is presenting in an unusual way, I want to get pregnant again but am concerned that it may make symptoms worse; does anyone have experience in pregnancy? I am afraid that my esophageal dysmotility will get worse with the pressure of pregnancy. Has anyone that has esophageal dysmotility gone through a pregnancy and did it get worse or stay the same? I am scared that I won't be able to eat if it gets any worse.
  9. I was diagnosed with esophageal dysmotility and I also have a positive RNA polymerase llll antibody. So far I have no diagnosis . No other symptoms. I have a hard time believing that this is just a coincidence! I feel like a ticking time bomb just waiting everyday for it to hit me. I have seen a specialist in NY and he says he cannot diagnose me based on the criteria. He explained that they don't test the general public for these antibodies so they don't know how many healthy people could have them and don't know. Anyone else have this situation and never go on to develop anymore symptoms? I am so stressed out because of this. Had to start seeing a psychologist and taking medication. Cannot think about anything else. Want to have another baby but feel like I have to put my life on hold. Not knowing is hard.
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