ChrisM28

Thank you for your reply. I quite agree it's mad! According to the expert list the nearest expert to me is in Paris! I'm in the UK

Hi all I have generalised morphea undiagnosed for 4 months. All over front, most of back, legs and arms. Started methotrexate (MTX) two weeks ago - test dose 2.5 then 2 doses of 15mg each with a 5mg folic acid two days after. Feeling very tired, nauseous. This weekend particularly tired and nauseous. This morning - 3 days after MTX developed a sore in the corner of my mouth. Rang registrar as per instructions on the MTX leaflet. She said stop taking it until I'm seen in clinic. I said that I had read that many people seem to need more folic acid when on MTX. She said as I've reacted so s

Hi All, I 'm a 65 year old woman who has recently been diagnosed with generalised morphea. It's on my trunk, arms, back of knees and I'm fed up!! Was treated for eczema for 4 months before asking for a referral. Had my first test dose of methotrexate last night (5mg) now have a thumping headache! I'm having steroid infusions on 3 consecutive days next week. Anyone out there with similar who can offer me some hope that there's a light at the end of the tunnel? And talking of light wondering if anyone has experience of UVA1 phototherapy? All help gratefully received. Chris