Thanks both Joelf and Dimarzio for your replies. Ideally I would like to carry on working, full time if possible, as I love my job. But if I have learnt something this past year is that things can change very quickly and you cannot take anything for granted. That said, my last news are quite good as my lung test gave an improved gas exchange from 41% to 50%, and I am now on steroids which have pretty much taken the pain away.
Hello, I live and currently work full time in the UK. I was diagnosed with scleroderma about 8 years ago and last year I was also diagnosed with rheumatoid arthritis (RA) and interstitial lung disease. I have really struggled with pain and lack of mobility this past year and have had to take a lot of time off work to fit in endless appointments and treatments, including six month course of cyclophosphamide. My employers are pushing for me to go down to part time work and it has started me thinking about eventually not being able to work at all. I was wondering if anyone here had any personal experience of requesting permanent incapacity and how the process works. Many thanks