Hello all, I am new to the forum and was hoping for advice and support. My mum was diagnosed with rheumatoid arthritis (RA) and scleroderma in September 2016. It came as a shock to us all as mum had been healthy all her life and then suddenly developed these illnesses which made her very ill, weak and house bound. Mum has recently completed 6 sessions of cyclophosphamide after they discovered signs of early fibrosis on her lungs. The cyclo was successful and mum has now been put on mycophenolate, does anyone have any experience of taking this? It's just really difficult at the moment. It feels like she hasn't had a pain free day since developing this disease; she is in constant pain and agony. She is also taking prednisolone 15mg until the mycophenolate kicks in but it doesn't seem to be helping at all. The last two days the inflammation has been really bad on her feet and hands and she has struggled to get out of bed. She spent the whole day in bed yesterday.
Will my mum ever start to feel well again? And is this a life limiting disease? So many questions I have and so much fear, none of our family or friends understand what she is going through. Hope someone can help.