Lesley replied to Lesley's topic in Sclero Forums (MAIN)Thank you for replying. She is managing to stay upbeat and still enjoy the things she loves. She is starting radiation treatment this week. She's actually more concerned with her pulmonary hypertension caused by the scleroderma. Is this a common occurrence with the disorder?
Lesley posted a topic in Sclero Forums (MAIN)Hi I'm new to the forum. I don't have this disorder but a very close friend does and it has done a lot of damage over the years mainly to her stomach and digestive system. A while ago she was diagnosed with ground glass nodules on her lungs which recently turned cancerous. The doctors are unsure how each treatment option will effect her with this disorder as they have never treated anyone with this before. I came here on the off chance of finding someone else might have been treated for similar or if there's any specialists with a specific interest in scleroderma. Hope it's okay to join on her behalf, as she's not too confident on the Internet, but I will hopefully get her joined up soon and have her up and running. Yours gratefully, Lesley.