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Leejames

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Everything posted by Leejames

  1. Scleroderma - looking for support.

    Hi guys, so I have been to hospital and it was good news. I had a severe throat infection which was causing my throat to stick because my airway is so small and it was causing all those symptoms. So a course of antibiotics will hopefully sort me out. Thanks Lee.
  2. Scleroderma - looking for support.

    Thankyou I will keep you all updated with the outcome.
  3. Scleroderma - looking for support.

    Hi thanks for your reply. Yeah, it's been a pretty long road. I have had most of the tops of my fingers amputated because my skin couldn't keep up with my growth. I only really have limited use of one hand. Collapsed lungs, terrible bowel trouble. I was hoping to get away with any swallowing difficulties. It hasn't stopped me having a good life though, I'm married with a little boy. Just need to get over this next hurdle.
  4. Scleroderma - looking for support.

    Thanks for your reply; no blood thankfully. Lots of saliva though. I've always suffered with the acid indigestion side of things, but the Lansoprazole has always worked well for me. The dismotility narrowing of the oesophagus is what I fear could be happening. I really could do without the aggravation of a general anesthetic and time in hospital.
  5. Scleroderma - looking for support.

    Hi guys, My name's Lee, I'm 38 and I have been suffering from Raynauds and Scleroderma since I was 5 years old. I also have type 1 Diabetes.. Just this week I have really started suffering with my swallowing; it feels like I have something constantly stuck in my throat which is making me panic a bit. I'm not due to see my consultant at the Nuffield Orthopaedic Centre until the end of September. I'm just after some advice really as to what might be happening & how it might be treated because it's becoming really uncomfortable.. Thanks Lee
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