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Angel11

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  1. Thank you very much for the information and links. It’s very helpful to read of anyone else dealing with similar issues. Scleroderma can make you feel like you’re alone on an island sometimes. It’s comforting to know you’re not alone! Wishing everyone dealing with this disease a future of hope and healing.
  2. Hello! I’m in the early stages of systemic sclerosis. I’m seeing a scleroderma expert. I have no skin thickening yet, but have Raynaud's and intermittent tightening on my face and hands, extreme fatigue and joint pain. I had an X-ray of my hips and it shows narrowing of my hip joints and calcific tendonitis near my right hip. Does anyone else have calcific tendonitis? My doctor thinks it’s most likely caused from my systemic sclerosis.
  3. Thank you very much for the information, Margaret. I had a third blood test for anti-RNA polymerase III yesterday. We'll see if it's still positive! I still have no skin issues, but I do have a lot of stomach problems, etc and my Fibromyalgia/CFIDS symptoms. Whether all or some of my symptoms are related to Scleroderma is yet to be discovered with the Scleroderma Specialist. I really appreciate all of information. Everyone is so amazing and strong on this forum! I wish everyone the best!
  4. Thank you very much, Jo. I really appreciate your response and all of the information! I'm very thankful I found this site. I will definitely keep you posted. Take care
  5. Hello! I'm new to this forum and am hoping someone can help me. My rheumatologist thinks I possibly have Scleroderma. I was referred to the University of Minnesota (U of MN) and I am waiting to be seen. I have had fibromyalgia and chronic fatigue syndrome for about 13 years, among a long list of other health problems. In the last 1 1/2 years my symptoms have gotten worse: sudden weight loss of 15 pounds (which is better now after IV iron), sudden anemia, much worse bilateral joint pain that effects knees, hips, hands/fingers, toes, etc. My Raynauds has gotten worse, worsening fatigue, intermittent swelling in lower legs & hands, small bumps on arms that resemble chicken skin & stomach problems are worsening, among other things. My rheumatologist ran several tests and my anti-RNA Polymerase III keeps coming back strong positive, but nothing else. My rheumatologist is stumped and doesn't want to conclusively say Scleroderma and is sending me to the U of MN Scleroderma Clinic. Has anyone else had similar symptoms of onset? I am worried and I really don't feel well. I feel something has changed in my body and it's not just Fibromyalgia or Chronic Fatigue Immune Dysfunction. There is a lot more to my story and I have other symptoms, but thought I'd start with this. Thank you in advance for your help!
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