Good afternoon everyone,
I have joined this forum as a wife of a CREST Syndrome sufferer (Calcinosis, Raynaud's Phenomenon, Esophageal Dysmotility, Sclerodactyly and Telangiectasias). He has been recently diagnosed with this syndrome and has been on medication as follows - 4 Prednisone, 1 folic acid, 1 Potassium (every day 7 days a week). He also started with 2x Methotrexate Tablets once a week and has built up gradually to 6 Tablets once a week (the Physician has also decreased the Prednisone gradually and he is now only taking 1 a day for the next 2 weeks and then after that he has to stop in its entirety)
He was diagnosed in July after being hospitalized due to paralysis in his arms. After extensive testing and a 12 day stay in hospital he was diagnosed and booked off work for three months to recover.
He saw his Physician a week before he went back to work and he was very happy with his progress. He had gained a bit of weight and was walking like a normal 47 year old man should (in fact he could even dance again - albeit gently!!) The doctor was happy for him to go back to work.
Since he has been back at work again I have noticed a huge change. He is battling to walk again and is suffering with severe pain and stiffness in his legs (he works for a company that builds hydraulic pumps for the mines, he uses heavy duty machinery and is on his feet all day - 7.30a.m to 6.00p.m)
Unfortunately the first appointment I can get at the Physician is the 29 January 2018 and he has an appointment with his Rheumatologist on the 1 February 2018. This seems like an awful long time to wait especially when he is feeling like he does.
He is convinced that the muscle and joint pain and stiffness is worse when he takes the Methotrexate - could this be? Could it be from cutting down on the Prednisone or could it be the heavy duty work that he does. I must be honest, I am at my wits end with all this. So very worried about him.
I would appreciate any advice.