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Tabug

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  1. Hi Shelley, Thank you for your post. They have decided to keep him on the cortisone treatment for a little longer until he can see the Rheumatologist on the 1st February as he was suffering terribly with pain when they started weaning him off the cortisone. Unfortunately Cortisone is not the long term answer so I am hoping that they find a good alternative. He also takes a painkiller, but only if absolutely necessary. It is amazing how "normal" he is when he has no pain.
  2. Thank you Jo - you are an angel. Will chat again soon
  3. Hi Joelf, Thank you for your response. It is very reassuring to know that there are people out there with similar problems. I feel that it can often be a lonely disease as not many people that I have spoken to have ever heard of it. The Rheumatologist that he is seeing in February specializes in CREST and all related diseases. I am in South Africa and the good Specialists are always so fully booked that is almost impossible to see them when absolutely necessary. I have managed to get an appointment with his Neurologist next week as he had a cancellation (thank goodness). So we will discuss the medication and dosages with him. Do you have any suggestions on pain medication that he could take in the meantime? He arrived home from work yesterday and took 10 minutes to get out of the car and into the front door - something that should take him a minute. He could barely walk and had to hold on to the wall for assistance. He has been told not to take any NSAID's as he has kidney damage from all the years of taking them (he was previously misdiagnosed with Rheumatoid Arthritis). Looking forward to hearing from you. Taryn
  4. Good afternoon everyone, I have joined this forum as a wife of a CREST Syndrome sufferer (Calcinosis, Raynaud's Phenomenon, Esophageal Dysmotility, Sclerodactyly and Telangiectasias). He has been recently diagnosed with this syndrome and has been on medication as follows - 4 Prednisone, 1 folic acid, 1 Potassium (every day 7 days a week). He also started with 2x Methotrexate Tablets once a week and has built up gradually to 6 Tablets once a week (the Physician has also decreased the Prednisone gradually and he is now only taking 1 a day for the next 2 weeks and then after that he has to stop in its entirety) He was diagnosed in July after being hospitalized due to paralysis in his arms. After extensive testing and a 12 day stay in hospital he was diagnosed and booked off work for three months to recover. He saw his Physician a week before he went back to work and he was very happy with his progress. He had gained a bit of weight and was walking like a normal 47 year old man should (in fact he could even dance again - albeit gently!!) The doctor was happy for him to go back to work. Since he has been back at work again I have noticed a huge change. He is battling to walk again and is suffering with severe pain and stiffness in his legs (he works for a company that builds hydraulic pumps for the mines, he uses heavy duty machinery and is on his feet all day - 7.30a.m to 6.00p.m) Unfortunately the first appointment I can get at the Physician is the 29 January 2018 and he has an appointment with his Rheumatologist on the 1 February 2018. This seems like an awful long time to wait especially when he is feeling like he does. He is convinced that the muscle and joint pain and stiffness is worse when he takes the Methotrexate - could this be? Could it be from cutting down on the Prednisone or could it be the heavy duty work that he does. I must be honest, I am at my wits end with all this. So very worried about him. I would appreciate any advice. Many thanks
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