Jump to content
Sclero Forums

Ronald

Members
  • Content Count

    111
  • Joined

  • Last visited

About Ronald

  • Rank
    Silver Member

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. I have a strange ulcer on my left index finger. It started about 30 days ago getting sore, now its black under the nail and swollen. Has anyone ever taken antibiotics before for ulcers? I ask because since the circulation is poor how does the medicine get in there?
  2. I have had it since 87, my lungs at a 40% capacity. I am not worried about the catching the virus, whatever happens, happens. I am more worried about the supply chain being disrupted by people hoarding. Too much negative stuff in the media all the time, I think if you take normal precautions you will be fine. I still go out shopping, I just make sure I wash my hands after and disinfect my phone. Other than that, I am not letting the fear of this rule my life. This will end and we will be back to normal again. Just hang in there and try not to let all the negative news get you down.
  3. I have one bad finger on my left hand, the index finger. Had a ulcer on there since June 2019. Now I have another, under the finger nail. Has anyone ever had one of these? I seen the doctor yesterday its not infected, I do wear a nitrile glove on that hand to retain moisture and that seems to help with that constant throbbing pain. That finger is always the worse one for ulcers. Any tips?
  4. Thanks, never heard of that before, just Googled it, very interesting. Thanks.
  5. I was diagnosed with major depression, severe anxiety and OCD back in 2002. I lost interest in computers, not sleeping and felt terrible, life was awful. After being put on Remeron, that drug saved me. I could sleep 8 hours and I was always hungry. I gained a pile of weight on that drug, but I didn't care, it made me feel better and doctors all said I need more meat on my bones. Now the meds don't work anymore and I am seeing a new doctor in Jan 2020 for new meds. I think my depression may be at work here affecting my sleep. Just a gut feeling. I have no lost interest in computers, that's my joy in life.
  6. In June/July?part of Aug 2019 I was walking up to 3-4 KMs a day, no problems. When I got sick I was so weak walking was hard. After I was better, I developed a bad cough that I picked up in the hospital. Then I started to see my walking distance diminished substantially. Now I walk around the block thats only .3 KM. I am winded. There is something wrong with my lungs. Went for the test today and one thing that's going to make a capacity reading accurate, is my weight. Last time I had one done I was 170, now I am 128. I was 170 because of antidepressants causing me to gain weight. I have been on them since 2002. Before that I was always 130-135 pounds. I should have told that to the tech that my actual weight should be 130-135. I am losing muscle mass now, this weight loss is crazy.
  7. I just seen on my digital ulcers post I was complaining of sleep problems back on Sept 26, I had no idea they have been with me that long. Wow. I guess that is not new but the panic attacks are. Got Xanax for panic. But they don't like to give you very much.
  8. I have to go for a pulmonary function test on Wed 13th and I am really worried. Last time I went was little over 3 years ago and I was at 42% lung capacity. My doctor told me PF and chest XRay every 3 months. I am really worried about the test, my lungs always hurt afterwards from the forceful breathing and I am worried about the capacity being a lot lower. I know it is, as when I walk I get short of breath, in addition I just started getting panic attacks 3 weeks ago, so if it's not one thing it's another. They are really affecting my sleep, I can fall asleep okay but I can not stay asleep, last night was good I got 4 hours, the night before that 2 hours and 2.5 hours bed rest (no sleep). So averaging 3-4 hours sleep everyday. Any help would be appreciated. My doctor knows all of this.
  9. Sweet, I am actually serious. I use to eat a very poor diet and I think that made the process slow down. Junk food and fast food was a main part of my diet my entire life. This last year I have changed, exercising, eating real good and my SD is getting worse.
  10. Hi Pamela, I just may have to get use to it. Seeing my scleroderma getting worse is a bit depressing, ulcers are really getting bad, and winter is not even here yet. I guess I am lucky, this all started back in 1984 and diagnosed in 87, internal organs involved, lungs, GI, tight skin, etc. I cough so much you would think I had lung cancer. But I am still here 32 years after diagnosis. Maybe its all the junk food I ate over the years.
  11. Hi, It's possible, and am not sleeping well at all, I get 3-3.5 hours sleep every night, I just cannot sleep. In the daytime I have a hard time functioning, due to lack of sleep. The infection and 26 days of IV and oral antibiotics really messed me up. I think my immune system is not operating at full capacity due my my illness. That's all I can figure out what's happening.
  12. Hi everyone, For some reason I am getting more painful ulcers on the end of my fingers. This all started back in the 80's and when I was first diagnosed with systemic scleroderma in 1987. For some reason I am getting more painful ulcers that take a very long time to heal. Not sure why all of a sudden they are getting bad. Been very sick with an infection lost 22 pounds (not from scleroderma). Any hints? Any advice?
  13. Only pain killer I take is Tylenol (acetaminophen), extra strength. I tried an Aleve ( naproxen) and could not pee.
  14. Went to ER by ambulance last night, swelled up really bad, face and neck, every hour it got worse, waited in ER 5 hours, they gave me 2 antibiotics IV, no sleep, got home at 6:50 ate (hard to eat so much swelling) and went to bed. The swelling stopped. My face is pretty bad though. But the progression stopped with the IV antibiotics.
  15. I am getting a referral to her on Tuesday, as I have not seen her in 3 years, they need a referral letter. Thanks for the support.
×
×
  • Create New...