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Ronald

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Everything posted by Ronald

  1. At the doctor's yesterday. When I was there I asked him to listen to my lungs, as I was concerned about all the crackling sounds. He could hear abnormalities in both lungs. So I am going for a chest XRay to have that checked out. My dad who was 54 when he died of lung cancer from smoking, worries me that it could be cancer, as Scleroderma patients are at higher risk of lung cancer. I don't smoke. Will let you know the outcome. Ron
  2. Finger update, went to doctor, he looked at the finger and was going to give me oral antibiotics. I told him the tough time I have with them so he gave me an antibiotic cream to apply 3 times a day for 10 days. When I was there I asked him to listen to my lungs, as I was concerned about all the crackling sounds; he could hear abnormalities in both lungs. So I am going for a chest XRay to have that checked out. My dad who was 54 when he died of lung cancer from smoking, worries me that it could be cancer, as scleroderma patients are at higher risk of lung cancer. I don't smoke. Will l
  3. Kathy and Amanda, I was diagnosed with Raynauds in 1984. In 1987 Scleroderma. In 1992 Diffuse Scleroderma. I have had hundreds of finger ulcers over the years, extremely painful, because I had to work outside in the cold. It gets really cold in the winters here in Canada. Tried an anesthetic cream to deaden the pain, it worked. Since I work inside, since 2009, I still get ulcers but they are more of a nusance now. But this new one that is the largest one I ever had and its growing. I suspect my doctor will give me antibiotic cream. He gave me that for and elbow infection 3 years ago. Over the
  4. Is it normal of finger ulcers to get bigger? The ulcer I have been nursing is getting a bit larger, is this normal? I am going to the doctor on Thursday. Any comments?
  5. Hi Kathy, I have a chronic cough, about 10 years. I was speaking to a nurse on the phone, a service we have in Alberta Canada, that you can call and get advice from a registered nurse, they will not diagnose. I told her my cough was from acid reflux, but she didn't think so. She felt it was from the lungs. I have the crackling sound all the time. My family doctor doesn't seem to think it’s a problem. But he's not an expert on Scleroderma.
  6. How long did you stay on this med? How did they determine that is stopped lung damage?
  7. Miocean, What is going on with your lungs? What is the diagnosis of your lung disorder? How old are you? I have lung involvement with scleroderma, just wondering what you are going through.
  8. I have SD and I also have blepharitis. That can cause the eyelids to swell up and get infected. I would go see an opthamologist. They will tell you pretty quick what it is. That's been my experience. The treatment if infected is antibiotics for the eye and keeping the lids clean. Since I have been keeping my lids clean, it's under control, have not had any problems in that past 3 years.
  9. Does anyone here suffer from crackling sounds from the lungs when breathing? I can hear it plain as day when I lay down. My scleroderma doctor can hear them, but my general practitioner could not. I had a pulmonary function test and my lungs don't have the same capacity as they use to. Also on X-Ray, it shows up as fibrosis. Last night the sound was very loud, I called Healthlink here in Alberta Canada, it’s a service where registered nurses take your symptoms and determine whether of not you should see a doctor. Today they just said monitor it. Last night it really scared me because the soun
  10. Hi, Thanks for the reply. I went to the drug store and let the pharmacist look at it, she didn't think it was infected, but the side of my finger just by the ulcer is swollen a bit. I am going to try topical antibiotics, if they don't work I will head to the doctors office. The pain was not bad at all today, after putting on the antibiotic and a bandaid before bed, it relieves all of the pain. Its just when it dries out, it become painful. I am typing with that finger and it does not bother me. But I never had an ulcer like this before. Will closely monitor it.
  11. Thanks for the reply, my problem ulcer is not red, but when I shine a light in it, its shiny in the center, almost like its an open wound. When it dries out its extremely painful, but when I put a topical antibiotic and bandaid on it, the pain goes away. I am trying to treat this myself, that may or may not be the best idea, but doctors here push oral antibiotics and my esophagus and stomach can not handle them, I get a real bad reaction to them. I have another ulcer on my right middle finger, but its just a scab and causes no pain at all, I have had that one for months. Just the new one i
  12. Has anyone ever been on oral antibiotics for digital ulcers? I have a real bad time with them, I am trying to treat this new ulcer with over the counter topical antibiotics. Can others please share their experiences?
  13. Thank you for your help.
  14. Hi, I am a 52 year old male that was diagnosed with Diffuse Scleroderma back in 1987. I developed Raynauds in 1984. I have all the classic symptoms, and some internal organ involvement. My problem now is an ulcer on my left hand index finger right at the end of the finger, on the corner of the fingernail. It appeared about 2 weeks ago and I usually just leave them as they heal on their own. This one is stubborn. It is very painful when the finger is dry. I tried today using a topical antibiotic and a finger tip bandaid and had no pain whatsoever. My questioned is what do you
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