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Joe2

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About Joe2

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  1. You say Sjogren's can go systemic, more than very dry eyes and mouth I guess? Does that mean with pm scl.70 antibody l could still be just Sjogren's ( which seems a lot less scary than diffuse SSc!). I've read of people having antibodies but no symptoms; my journey was the opposite, masses of symptoms for nearly 2 year, antibodies found only in last 3 months. Can the illness start before antibodies show? Sorry, so many questions, I'm just utterly confused how my health issues are so bad . Would love to hear if anyone else is having this rapid change and anyo
  2. I'm trying the autoimmune protocol (AIP) diet in a desperate attempt to outwit very rapidly progressing diffuse Scleroderma and myositis. I was very fit two years ago,and only had Sjogren's symptoms this time last year, plus mild Raynaud's. It is my only hope. I'm having a scary time with huge changes each week, struggling with walking, eating, much pain etc. I haven't yet been started on any medication.Can anyone suggest what medication can help please? Also does anyone find the AIP or other diet helps? Thanks for any feedback.
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