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About ejtauri

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  1. I received my home UVA-1 Photo Therapy unit yesterday. I can't wait to get started. However, there is a bit of confusion over dosage protocol that I'm waiting to clear up with the Dermatologists at Mayo Clinic before actually starting the treatment. I spoke to someone at Mayo today (she has several patients that use the Mayo machine) that is going to sort it out for me, and she also gave me advice and instructions on proper technique to bathe in the radiation and not cause harm. With my unit (National Biological Panasol 3D UVA-1) I'm supposed to stand 8 inches away from the bulbs f
  2. Thanks all. I have an appointment with a dermatologist in Dallas that is an expert in Morphea and UVA1 photo therapy. I'm also in the process of ordering my home UVA1 unit, so I'm hoping it helps.
  3. Hi all, I was just diagnosed by the Mayo Clinic with an extremely rare disease called Pansclerotic Morphea. I just confirmed how rare it is by searching this blog and only came up with one thread. If it was anywhere you would think it would be here. Anyway, the recommended treatment right now is with Prednisone, CellCept, and UVA1 photo therapy. I'm in the process of acquiring a home light unit, but in the meantime I'm considering treatment at a University hospital down in Dallas (UTSouthwestern). Does anyone know of any UVA1 treatment facilities closer to Tulsa, OK
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