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pamilla

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  1. Thank you all for your input, I am a tad surprised no one else had burning, redness, tanning then peeling, before major organ involvement; that was my first symptom of the oncoming renal failure, followed by high blood pressure, vomiting and itching etc. Scleroderma is indeed a tricky illness! The burning face mystery has been solved; my doctor asked me a series of questions like, "have you changed your diet, washing soap, new tablets (vitamins) etc". then it hit me. One thing that did change happened a week earlier; the light globes in my lounge and bedroom blew out. I live in a retirement village so I rang the office to get maintenance men to change my globes. It is in my records to not use those new lights that are curly in shape as they omit ultra violet light; I can't sit under them as I get a BURNING FACE, so when I got home there was a note on my table saying they had changed globes for me and I assumed they used incandescent lights but they didn't, they forgot and put those UV globes in and I had been sitting under them all this time. So I rang the office and they came and changed the lights to incandescent globes and within 24 hours the burning stopped! I rang the doctor and she inferred that it was not that uncommon for patients with autoimmune disease to react to UV globes, so the mystery is solved. I am so relieved; it's like sitting with your face into the sun getting burned and you can't stop it. So, so happy and thank you all for taking the time to respond to my topic..
  2. Thank you all for taking the time out to reply to my post. My face is still burning it's so uncomfortable, it's hot and the skin is reddish, no sign of tightening as yet. Why I thought it could be scleroderma, I lost my kidneys to scleroderma a few years back and ended up on dialysis, but prior to the renal failure diagnosis my whole abdomen was burning, skin was reddish and hot: it stayed like that for a short time and then it went tanned, then finally the skin just peeled off. It was literally like a sunburn,by the time I got to see the specialist it was too late and the damage was done. So for me I am wondering if the burning sensations are a signal sclero is active ? As this burning face is the same sensation as my stomach burning all those years ago, has anyone else experienced burning, tanning and peeling of skin prior to renal failure or other organ involvement? I understand that no two people are the same when it comes to scleroderma, but would be interested to know if others get a burning sensation first? I have an appointment next week with my doctor. I am also experiencing sudden onset of hot and cold episodes very flu like, ugh.
  3. Hi everyone, I have diffuse scleroderma and I am experiencing a new symptom that I haven't experienced before. My face is burning non stop and the only relief I get is with a wet face washer on my face. I have no sores or pimples, but have a couple of blisters on my skin and lip. Can anyone enlighten me as to whether this is a typical symptom of scleroderma? (Been diagnosed for 10 years and not had this before) Thanks and would appreciate any input from others.
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