I'm a 50 year old female with secondary Raynauds for about 2 years now and was diagnosed last week with SSc. My Pm/Scl 75 and 100 were high and I have the thick skin along my index fingers, splitting on my fingertips, joint pain/swelling in my hands, patches on my knees and feet, fatigue, and just starting to deal with heartburn. I see a rheumatologist on November 6.
My doctor is putting together a list of tests I should have done and I'm doing a lot of research in preparation for my first visit. Any helpful advice as I prepare for my visit and as I start this journey? So far the hardest part for me has been realizing no doctor can look at me and tell me what the disease will do or what it will look like in my particular case.