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Cmfc0523

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Everything posted by Cmfc0523

  1. Hi Phyllis, I recently received the same results as you, with very similar symptoms. I have seen a Rheumatologist, as well as had the ‘standard’ Echo and Pulmonary Function tests, all encouraging. Right now, the Rheumatologist has me ‘on paper’ as having Undifferentiated Connective Tissue Disease, and will continue to watch for any new symptoms to point toward Scleroderma. The most important thing she told me was exactly what Jo said, which is that many live long, often uneventful lives, with this disease. And, knowledge is power! You can only treat the things you know about. I fou
  2. Hello all! I’m hoping for input on some confounding pain. I’m about three months into this journey, and so far my chief complaint has been some joint pain. Most is in the typical places like hands feet and upper back, but I also have this crazy, random pain in my upper chest. I should note that I had both an Echo and PFT 3 weeks ago and both were great. My doctors don’t seem to think it’s significant, but it is irritating and a bit painful at times, not to mention a little unsettling since it is my chest. It seems to come and go like my back, with no real trigger, except it does se
  3. I know this is difficult to answer, but I would really love to have some input on what lung involvement and shortness of breath ‘feels like’. Two weeks ago my Rheumatologist confirmed that I am ACA positive for Anticentromere B. I originally saw her for mild but symmetrical joint pain and sore shoulders, so she suspects Sine Scleroderma and referred me for an ECHO and pulmonary function tests (PFT). I had the ECHO yesterday and was told that if I hadn’t heard anything by now, no news is good news. Yay! But since I got the call two weeks ago, vague symptoms seem to have
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