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Katlove007

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  1. Becky, I am sorry to hear you are having a hard time. My best advice is to not give up on finding someone to see you. I have had this same problem where I am at. I was told because I didn’t show the clinical signs that they would not see me. It took calling several offices before finding one that would just sit down with me and explain what was going on. I have been back since I started having other skin issues come up and I am still in the wait and see, as I am not showing the classic signs. I am waiting to get different insurance in order to go to one of the recommended specialist on here. I am lucky enough that I have actually made contact with someone who has scleroderma in my area and was told that the doctor in Denver was leaving and that the clinic in Arizona is taking new patients again. It has been very helpful finding someone to talk to face to face with. All the advice on here is very helpful. I have been my own advocate and looking into the tests that need to be done and have asked my primary care doctor who has been willing to get the tests done and everything so far has come back okay. Although some of the tests are not available either. It can take a long time to get a diagnosis and that has been the hardest part so far. Hugs. Hang in there and don’t give up. I hope this helps you some.
  2. Update: I finally convinced a rheumatologist to see me. I am very scared as I have had no explanation of anything to me since I got my blood work 3 months ago and am afraid of getting the worse possible news ( of course) being a single mom and I have no one to help me with my kid. I believe I have been having some symptoms and was wondering if they sound familiar. Red rash that comes and goes on my hands along with very stiff joints in my hands but then it will go away as fast as it came on. I have a lot of other orthopedic issues as well so it hard to tell if pain is from orthopedic or if it maybe something else.
  3. Thank you for your response. Unfortunately at this time finances limit me from going elsewhere maybe at a later date I’ll be able to see a specialist. This forum has really helped with my anxiety and fear about my blood work and hopefully it does not progress for me.
  4. I have just recently received blood results of ANA 1:40(neg) and anti-scleroderma 2.4. No one in my area is taking any new patients and I was told that because of the low ANA and all other blood work was okay that I’m in the wait and see category. I would love to be able just to sit down and talk to a specialist, but for now I’m told I need no referral. I'm wondering if anybody else is ever been in the situation and how they proceed.
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