In 2013, I started having Raynaud's in a few fingers along with a few other things that caused a ton of anxiety and I went to ER who then referred me to a rheumatologist. After a ton of blood work, I was told I had a positive ANA and anti-centromere. I see a rheumatologist every year and nothing has really changed other than some GERD that bothers me on a fairly regular basis. I had an echo and PFT about a year and a half ago and have felt like it seems unnecessary to do it yearly since I have no other symptoms or diagnosis.
However, I’ve been reading that I could be having organ problems even if I don’t have external symptoms and now I’m an anxious mess. Wondering what you suggest or if anyone is in a similar situation. It feels like I’m just waiting to get worse and it’s a horrible way to live.
