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Angelique

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About Angelique

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  1. Hello all, I took the plunge and made an appointment with the Doctor who has subspecialty of Scleroderma which was listed here. I have to wait until February to see him. I decided that this is my body, I need to learn as much as possible about this disease. I really need to know we're heading in the right direction with all these meds. The specialists I see, causes me to question my treatment. Pulmonologist I saw last month, she came from John Hopkins and has worked with scleroderma patients previously. She said to me, that she has seen Cellcept used on those with lung
  2. Hello, I'm back again to update on the latest and perhaps a better definition of my diagnosis. My CT lung scan showed a dilated pulmonary artery. Off for an echocardiogram to see if I had pulmonary hypertension. Relieved the echocardiogram came out fine. Although my Rheumatologist wants me to see a pulmonologist anyway. My Rheumatologist is telling me that I have CREST. She increased my cellcept to 2000 mg which is slowly taking away my hyperpigmentation in blotches all over. My SED rate refuses to drop. Rheumatologist is telling me perhaps being on Cellcept longer will help with inflamma
  3. Hello Sweet, Thank you for your insight. I appreciate you reminding me that I need to be patient regarding a diagnosis. My Rheumatologist gave me information on Cellcept and Plaquenil. After a series of bloodwork, she preferred I take Cellcept. I will see her next month to further evaluate. I'm just thankful I'm tolerating this medication. All too often I have gastric upsets with so many medications. As for the hyperpigmentation, this made great strides during the period when I wasn't on any medication for this illness. Now I shouldn't complain since it's
  4. Hello, I'm new to your site and done numerous searches to become more educated about scleroderma. Being newly diagnosed after nearly a year of discomfort, pain, several diagnoses and switching Rheumatologists here I am. Yes, i do have a few questions. My history is I'm a type 2 diabetic under control. I've been on prednisone on and off for nearly a year. I developed hyperpigmentation over 90% of my body. My current Rheumatologist said the hyperpigmentation on my hands is typical of scleroderma, but the rest of my body she is clueless why? I also deve
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