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TCoffey

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About TCoffey

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  1. I have been diagnosed with scleroderma , and before I was diagnosed I was debating if I had scleroderma or MS? I now wonder if I have both and presented the issues with my doctor who gave me a referral to a neurologist. I have the puffy hands, and calcinosis, and the red spots, and sores on my hands, I also have Raynaud's and Sjogrens. Most symptoms of MS I have except for the MS HUG. I was an armorer in military and was around TCE, PCE, Benzene, Lead, and other chemicals; I also was on a EPA Superfund site where TCE was known to be high amounts in water we drank. But in regards to MS, I have the blurred vision, the lost for words, or at the beginning in 2008-2010, and that got better for me. I have terrible short term memory, nerve pain, cramps, inflammation in the gut, my liver is bad , my kidneys work about half now, and my heart has leaky valve and some hardening in the pericardium. I am a mess in short, but I was always physically fit prior to and during my time in service, I ran cross Country in High school and worked up to running 16 miles a day most days when in service. I think my physical fitness prior to my contamination and start of disease has saved me some from quick downfall. My hands and legs go numb at night mostly, and part of my right leg most days. Sometimes my eyesight is perfect, I assumed it was my high blood pressure, but second thoughts is why I want pictures of my brain. The VA did a spine MRI but failed to read them, and they don't do well in specialist area of care anyway, they could not even diagnose my scleroderma; I had to go out and get my regular doctor to refer me to a rheumatologist, and they checked my ScL-70 which was 92, which most likely means diffuse. My face has pulled in around the mouth area, in fact I get cut lips in corner of mouth a lot. The chemicals I mentioned above are found in many household cleaners, and paints and paint thinners, model glues etc.TCE has been tied to scleroderma, and many of the Veterans from Camp Lejuene have also got scleroderma, so it has some environmental potential for so many men to have scleroderma and same exposures to certain chemicals. My genetic background is long history in Ireland, beginning in area in North Africa, with the Basque that live between Spain and France. So I assume that we were basque and moved to Ireland when it was first being settled or close after. My last name is found abundantly in Ireland, Britain, Wales, Australia. America. My blood type and RH factor negative also confirms my idea of being basque, with most people with my blood are Basque and Moroccan . Whatever the case I have read many stories about TCE being in 40% of our water in USA. Really scary idea when they say it has such a bad effect on some of us with Irish background. I have seen communities that have big problems with this, and the cases of autoimmune and cancers like leukemia is higher than normal. So anyway I will try to let you know when neurologist gives me more.
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