Hello! I was diagnosed with diffuse Scleroderma and ILD (interstitial lung disease), with a positive Scl-70. I am 33 years old.
I am really glad there is a forum like this!
Are there many people here with ILD symptoms like being out of breath and constant drowsiness/fatigue? Have you found any good ways to cope with this other than just resting? Are there any people juggling a full time job with this condition?
My kl-6 marker ranges from 550-650 depending on the day and is gradually getting worse.
Also, I am wondering if people have given birth with this ILD lung condition. My doctor says that, though it’s not clear, there is a chance that symptoms could worsen.
Thank you in advance!