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luvbnmom3

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About luvbnmom3

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  1. I had IgG & IgM antibodies, my doctor said that she thought possibly Antiphospholipid Syndrome, they base it on clinical criteria & 2 positive IgG or IgM antibody tests around 10 weeks apart (it seems every doctor varies on that though). Mine were positive both times. I have done a lot of research on them though & have read that sometimes they can bepositive in other autoimmune diseases such as Scleroderma & Lupus. I hope that helps!
  2. I have these little bumps I keep getting on my forehead, etc. and I have them on my back too. It looks like acne, I think. This has been an issue for a while, not a sudden thing. But I never had acne or bump issues at all until the last probably 6 months (other than 1 pimple, once a month... maybe. ) So, anyone out there have increased acne issues as their skin was getting tight?
  3. Hi Jeannie, My (fired) doctor says it isn't sclero because of that! It is taut on the back of the hand, thick & tight on the bottom, tighter on bottom. My hand is worse than my fingers, too. Tell me what your rheumatologist says once you ask him! tootles!
  4. When my symptoms first began (Raynaud's, joint pain, heat & cold intolerance) my hair also started falling out like crazy. I don't know how much I lost, but I have continued to lose it but not as rapidly as when it started. Mine is pretty unilateral; there is some on the right (in the front anyway) but my entire left side is quite thinner & I dry that side 'upside down' so give it life to keep up with the right. The weirdest thing to me is that the hair loss is on the left side of my head and the majority of my symptoms from the scalp down are on the right. I mean, the left
  5. That is an interesting idea to trace your hands & keep track! I haven't noticed mine being shorter (except when they look like sausages, then they look shorter) and my right is worse than the left as well - tighter. Mine are tighter on the palm side & thick. I have less range of motion in the right hand than the left so I am going to track that! I feel like I am shrinking from the inside out, except I look much heavier in the torso area.
  6. This saying things wrong is a newer symptom for me, so new that at this point when I say something wrong (seems like I just don't pronounce things correctly, I throw in an "r" I think or something) anyway, right now when it happens, I don't miss a beat. I keep right on talking like it didn't happen (because I'm not sure where it came from, I'm thinking, that was weird ), only I am feeling embarrassed about it now because I'm starting to realize that it isn't a once in a while thing. Everyone mispronounces stuff once in while, but I am doing this often and it is bothersome because I've al
  7. Aww. I keep looking for her posts on here. Thanks for updating us!
  8. The underside of my hands first, soles of my feet, & my lower back, but I feel like I'm getting thick & stiff from the inside out and my entire body is worse on the right, the left side always follows suit though. My face feels tightest around the hair line, I feel my skin pull tight on my neck when I turn my head & tight at the waist when I bend or turn at the side. The skin on my lower back feel thick & stiff, but under the top layer of skin & much more so on the right than the left, if I lay on my back in bed, I always have to adjust that side -- sounds weird I know
  9. I thought what Mando said about doctors just looking to see if your skin is hard and tight...it's like they ignore the symptoms that come first. A radiologist said I had "CREST" AKA limited Scleroderma, but the rheumatologist said no. Anyways, if I do have it, it is fortunately insidious and my swelling has been present and worsening for well over a year now. Anyway, back to the rings (don't want to get too off subject) but you mentioned swelling for 5 months, I've read that the length of time varies, some are more insidious, some quick.
  10. Ahhhh, the wedding ring dilemma! So... I didn't know anyone else struggled with this and I wish I had some advice to give you, but I can say I like the variety you've gotten so far. My wedding band was too big from the time I received it (12 years ago), but I always just put the engagement ring behind it so that it wouldn't fall off. When I was cold, I was always afraid I would lose them. FINALLY, after about 10 years of the band being too big, I decided to have it sized down & to have both rings soldered together. Much to my dismay, that was about the time that my hand swelling
  11. Thank you for your input everyone! It is interesting to read, this all makes more sense to me now. My skin on my lower back is tough compared to just above my waist, like it too "fat" so I am always adjusting it; it is kind of weird. That was there before I gained 15 pounds. Anyway, what y'all describe sounds more like tough skin than hard -- maybe when tough is combined with taut it feels hard! lol. I think too hard! Welcome asksd!!! luvbnmom3
  12. Hi! I was excited to scroll down & learn that you were taking the bull by the horns again! I know how it is when you feel like you've said everything you could say & nobody is listening & taking action...so then you feel like throwing in the towel. Good for you getting back up on your feet & taking them back on! I enjoyed reading others' comments to you, everyone here provides such wonderful support, from humor to encouragement! Hang in there, I'm anxious to hear how it goes today. Oh, something I thought I would mention. Rumor has it that when you see a doctor in
  13. I suffer from migraines and know many others who do as well. To me, when they become a chronic issue, a good neurologist isn't a bad idea. If you google "anatomy of a migraine' there are several articles that discuss the stages of migraines: maybe you and your wife can pinpoint some of the things that happen before the headache shows up and eventually prevent it from getting out of control -- sometimes that works. Also, the headache is a symptom of a migraine, so there are many things that can go with the headache, and some lucky devils (such as myself) often get migraines without the heada
  14. Wow! Well that was all just fabulous information...hehehe! That does help. I have had such a rotten time with doctors. My skin has been getting tighter, I FEEL IT GETTING TIGHTER (not the process of tightening of course...but you know) but they "check" it and say that it isn't tight at all and that I probably had some swelling. I always have to take my wedding rings off before going to bed because my fingers are too swollen in the mornings. (THEREFORE I know the difference between tight from swelling and just plain old tight). My eyes have been rather swollen (around my eyes) f
  15. Hello! So, I have a question, as scleroderma progresses, does the skin feel hard as it gets tight or what? I ask because my skin on my face is getting tight, I especially feel it around my eye and mouth and my right eye is harder to close. I have hyperpigmentation around the outside corners of both eyes and under my bottom lip. But, my skin isn't hard at all, it is just getting tighter and tighter! I am frustrated because I know my skin is getting tight, but it isn't hard, so does that mean it isn't scleroderma? Thank you for your help! I'm sorry I'm not around a ton, I am so bu
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