Jump to content
SCLERO.ORG
Sclero Forums

whirlway

Members
  • Content Count

    103
  • Joined

  • Last visited

About whirlway

  • Rank
    Silver Member

Profile Information

  • Location
    Washington State

Recent Profile Visitors

978 profile views
  1. No, he was out the day I called. I hate the way I have been feeling, brings back too many bad memories. I see him in June, after I get back from my vacation. Hopefully that will make me feel better. Thanx. ;0)
  2. I have been taking Cellcept for several years now and lately have not been feeling very well. I have had to do several prednisone tapers. (ICK)!! I am wondering if anyone else takes this drug and has found it to be less effective after a period of time.
  3. In my younger days before a hysterectomy, every time I would have my period, my fingers would all turn black from my gold jewelry. I always thought it was strange, but after no more periods, no more black fingers. We are a strange lot. Lots of weird things happen to our bodies that no one can explain. ~whirlway
  4. Hello all, I have been away for quite some time. Just wanted to say that Sweet, is the sweetest! We had a great lunch. It was so nice to get together withsomeone who totally understands your situation. Sweet, you know my thoughts are with you and I am excited about getting together again soon. Hope our appt dates work out. ~whirlway
  5. Just my two cents, but you should always tell your therapist if you have any disease. My therapist, the 4th one, has done a lot of research on sclero and I have given her a lot of info also. When you get massage, a lot of toxins are released in your body, and that is why you should always drink a lot of water after a massage to cleanse the toxins out of your body. There have been a few times that I have either gotten a headache or gotten sick after massage, and it was probably my fault for not drinking enough water. My first therapist was my daughter, and she was the best, but unfortunat
  6. Thank you for all your kind responses. Jodi did see the dr and really liked him. He said she was an excellent candidate for a lumpectomy, because he said they don't do mastectomies so much any more. He also said he will know more once he gets inside. The guy was very kind to her, which I really appreciated. She should be finding out today when the surgery will take place. Since she has breast cancer, she automatically qualified for medicaid, so she doesn't have to worry about finances, she doesn't have insurance, which is another long involved story. Also, after the surgery, she will ne
  7. Some of you might remember when I talked about my sister, Jodi, who had brain surgery in July. She is recovering from that pretty well, there are still some things that are difficult for her to do. In Oct. my hubby and I moved her across the state so she could be closer to family. Well, yesterday we found out that she has breast cancer. She is seeing an oncologist today to see what he has to say as far as treatment is concerned. She is a fighter. She is also a diabetic and had a kidney transplant 23 years ago, which must be some sort of record. Please keep her in your thoughts today a
  8. I have been dealing with shingles for over a month now. I don't have any more sores or scabs, so that is good. I still have a great deal of pain and itching on my forehead and scalp, but the worst part of this deal was when the shingles went into my left eye. That is the reason I have not been very active on the forum for a while. I can't see very well and the light really hurts my eye, so I have to wear dark glasses in order to do anything on my 'puter. I have been through 4 different types of drops, I am still taking two of them, with hopes that my vision will return. I have been to
  9. Thanks for all the kind words of encouragement. Yesterday, when I was at the doctors, he kept saying how sorry he was and wished he would have thought to give the vaccine to me. He said that if you have a 'compromised immune system' you should have the vaccine. Well, we all know that hindsight is always 20-20. :) I would reccomend talking your doctors about the vaccine, either by phone or your next appt. I wouldn't wish this pain on my worst enemy, not that I have any, anyway. lol Don't know of any. I am seeing the optho guy on Monday, due to the fact that it is so close to my eye an
  10. So how many of you out there have had shingles? At least I figured it out and started treatment in less than 24 hours. I can't believe how painful it is, I have it on the left side of my forehead and into my scalp a bit. Of course it had to be on my face. Hopefully it won't leave any scarring. It is very close to my eye, so I have to call my optho guy first thing this am. What a bummer! Oh, and I get to start on 40 mg of pred this am also. Joy, joy. Only for three days and then start a taper, but it will take several days if not weeks for me to get from 10 to 5. It usually does. I h
  11. Jaxs, you are not a wimp. I completely understand what you are going through. I tried metho also, and it made me so sick. I took it for a couple of weeks, thinking it would pass, but I became so ill I could barely get out of bed, so no more metho for me. Some people cannot take certain drugs. The next drug I was given was immuran. Tolerated that well and took it for a couple of years before it became ineffective. Now I am on 2000mg of cellcept. Good luck. ~whirlway
  12. When I was a kid, many, many years ago, my uncle used to tease me and call me Whirlaway after a racehorse, because I could run so fast. When I first set up my e-mail accnt, I tried to get whirlaway, but it was taken, so whirlway it was. Too bad I can't still run that fast, I can't run at all now, due to the many surgeries I have had. I do have another handle but don't use it much and not here at all, it is Mamamariner. My kids call me that due to the fact that I am a complete and total Mariners baseball fan. My, oh, my! People in the pacific northwest should understand that. d:0) (If
  13. Maddy, sorry to hear about your pain and the amount of pred. you are taking. I tried plaquinel, but got no relief from it, and I was too worried about my eyesight to want to try it any longer. I was probably about your age when I tried it. Advance 20 years and I was still on 20mg of pred. Finally, I said this is enough, I have to get off this stuff. The first thing we tried was methotrexate, thought I was going to die, it made me so sick. Then I found my rheumatologist, one of the best things that ever happened to me. He put me on immuran and started the weaning process. It took 8 mon
  14. Sam, sorry you're not feeling well. It must be catching. We drove across the state to see my sis and a couple of our kids, and guess what. Got the icks. Everyone went to the horse races yesterday and I stayed home in bed. Oh well, that's the breaks I guess. We win a few and lose a lot. Makes us appreciate the good days all that much more. Here's to good days for all of us. ~whirlway
  15. What a difference a few hours can make. My sis called me @ 7:30 this am and told me she was back in a different hospital, a place where I am sure she will get good care and they won't try to kill her. Come to find out, the other place had put her on meds that could cause another seizure and also cause the horrible headaches she has been having. I have complete confidence in this dr. He has been her dr for a long time and it is too bad she couldn't have gone to the new place first, but she had no choice where the ambulance would take her. And to top things off, she didn't go by ambulance t
×
×
  • Create New...