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Everything posted by Tammy

  1. Tammy

    Nitroglycerin For Raynaud's

    Barefut, I had read an article about using 5% sodium nitrate gel mixed with 5% ascorbic acid (it has to be used sort of like epoxy, it can't be premixed, they react together), you might ask you dr about that, it is suppose to increase blood flow by about 3 times. I guess we could all use Viagra for Raynauds, it increases blood flow velocity by about 400%!!! :unsure: Sorry about the mowing and weed eating!!! Best of Wishes, Tammy
  2. I have a red ring around the outer part of my upper and lower lips. At first I thought that my lips were getting chapped but it has been there for a few months now and it's not dry like it's chapped. It looks like I tried to use a lip liner, anyone have any ideas what this might be and what I can use to try to get rid of it? Thanks, Tammy
  3. Tammy

    For Pity's Sake

    Thank you all so much for the warm wishes and hugs!! I went for another follow up today, the bone is exposed and has a bit of infection, hence the pain and continued swelling. I have to go back Thurs. if it's the same he is going to put me on prednisone (yeah :blink: ) I have most of the feeling back, just a small patch that is still numb. Thank you for all the well wishes. Hugs and Warm Wishes Back! Tammy P.S. I hope your left arm feels better Sam!!
  4. My doctor thinks that I have sclero, I have been reading a lot of the information on this and get as familiar with it as I can before I make an appointment with a rheumatologist but I am sooo confused, systemic, diffuse, linear? I have found that a lot of them talk about the hands and up, but what about Raynaud's of the feet als, where does that put you?!!??
  5. Tammy

    Dizzy, Nausea, Esophburn

    Hi Barefut, I sure hope that you were able to get some rest!! Does the pain from the heartburn move around into your back? If it does, especially if you continue to have that "full" feeling and you still have your gall bladder you might need to have that checked. Also, I am a pharmacy II tech and I have seen patients that take more than the "normal" dose of heartburn and related medication. If your daily medication isn't helping it is usually safe to take an additional over the counter antacid for acute attacks, but check with you dr. first because chalky type antacids can interfere with the absorbtion of other medications. BIG HUGS! Tammy :)
  6. Tammy

    Red Spot Inside Of Lip

    I really feel for you about your gastric problems, I have that quite a bit myself. Have you spoken to your doctor about any medications other than OTC products? There is a med. called Librax (it is also available in a generic) that will help to regulate and relax your digestive tract, it will cause some drowsiness until you get use to it. There is also Nulev (also available in a generic form), it is usually used to treat symptoms of IBS, dissolved under the tongue (sublingual works faster), it will help with pain and bloating, this drug causes drowsiness as well, it is usually just taken as needed whereas the Librax is taken daily (sometimes up to 3 capsules daily). Maybe one of these would work for you! Best Wishes Tammy
  7. Tammy

    For Pity's Sake

    Good news! I had a follow up with my dentist today, the feeling is back in my tongue and most of my cheek and I think once the swelling goes down that will return as well! valuable lesson: Never let a regular D.D.S. perform the job of an oral surgeon (OUCH!!!) Thanks for listening to me vent! Warm Wishes to All
  8. I spend almost 9 hours a day on my feet, lately (this morning for example) when I first get out of bed my feet sting and tinlge. My primary care physician ordered an ultrasound on my legs to see if I had any blood clots, I don't. I do have arthritis in my hips and Raynaud's in my feet. Does anyone else have this, is there an otc medication or supplement that can help with this?
  9. Well I made an appointment with a rheumatologist today. I did make sure to ask if thia particular dr tested and treated patients for scleroderma, YES, and she is only a couple of hours from me. The appointment isn't until October but I figure if I have waited this long a little longer won't hurt. They did tell me to call once or twice a week to check for cancellations. This will give me more time to get my medical stuff together anyway, any suggestions on what all I should take? I have one other dilema, at what point should I tell my family about this? I would HATE for them to worry unnecessarily!! My aunt who does know what is going on thinks that I should tell them now, she thinks they would be very upset if I do have to tell them later and they find out that this has been a possability and I have kept it from them. How did any of you handle this? Thanks Everyone Tammy
  10. Tammy

    Getting Nervous Now

    Hi Jane, I can relate to how you are feeling right now, the anxiety alone is a lot to deal with. I am making an appointment with a rheumatologist today, I am very new to this site and everyone here has been so wonderful, if you need support you have come to the right place!! I have known of my doctors suspescion for several weeks and I tried to deny it, didn't even want to know about it, then I found this site. I finally let myself have a good cry last night (while posting), now I am ready to move on and do something about it! Keep your head up and post anytime, it really helps to talk with people who understand what you are dealing with. Good Luck, Big Hugs Tammy
  11. When I went to the last rheumatologist, he said that I had several symptoms but that because of my age and the rarity of this disease he did not feel comfortable diagnosing or treating me for it, that was about 6 years ago. He did no blood tests of any kind, just looked over what my primary care physician sent and talked to me for about 5 minutes.
  12. Whoa!!....the closest specialist is over 300 miles from me, anyone happen to know of anyone good in the Arkansas/Oklahoma area?
  13. Hello again! Okay, I'm ready to make my appointment, I just have one more problem...I need a rheumotologist!! There are only 2 close to the city that I live in and I have been to see one of them already, he wouldn't treat me even though I had most of the symptoms back then, the other dr is his associate. I would not mind to travel (my hips might tho!!, lol) but I have no idea about the other dr's around, you can find them all day long in the yellow pages! Is there any where that I can go to find one in my area that specializes in this? :blink:
  14. Several years ago my doctor suspected that I had scleroderma, she sent me to a rhumitologist (sorry about the spelling!). He said that I had several symptoms but that at my age (about 26 or 27) he wasn't comfortable diagnosing it, especially since it "ins't that common". I am 33 now and have had to change doctors, my new doctor thinks the same as the previous! Over the past year I have had a lot of health problems so when the new doctor said something about the scleroderma I told her that if there wasn't anything that could be done about it I would rather not know that I have it!!, is this a wise coice? ANY advice would be GREAT!!!
  15. Thank you for the replies, I started a list this evening! I am getting a little more nervous now, the more I read the more I realize that this may be a reality for me. Who knew that something like IBS could be related to this! I haven't told anyone in my family yet other than my husband and my aunt so you guys have been more help than you know, I can't express! Thank you so much for the "hugs" I could really use them now. Big hugs back :)
  16. How do you know what symptoms are related, do you just make a list and let them figure it out?
  17. A heart felt "Thank You" to all who have replied to this post!! I don't know any of you but I already think that you are great! Well, my next questions are, where do you start, what kind of doctors do you use, what tests will they run (if any)?!? How do you know what stage you are in? The Raynaud's started when I was 14 or 15 and only affected 1 finger, now it affects all of the digits on both hands (I get a lot of finger tip lacerations too) and both feet. I have arthritis in both hands, both hips and the neck, uterine fibroid tumors, I had a pituitary tumor removed when I was 17, high blood pressure, low blood sugar, I had to have my gall bladder taken out earlier this year, and a host of other conditions, how do you know what is related to this and what isn't?!? I feel overwhelmed and a bit like a hyopochondriac (sorry about the spelling). Most of the time I want to just sit and cry! I haven't told anyone in my family about this other than my husband, up until I found this site everything that I had read about it was doom and gloom. After reading some of the other posts and replies to this one, I am finally seeing some light at the end of the tunnel! Again, thank you, to all who have replied