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About Someone_Specials_Mom

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  1. Hi Dawn! I'm sorry to hear about your daughter. My daughter has systemic sclero. She was 17yo when we found out. She was diagnosed at 2 with a hiatal hernia, which doesn't give her much problems anymore. She also has hypothyroidsim. The only signs of the sclero is a tendon rub in her finger. This is how we found out about the sclero. Her finger was bothering for a year before, ran losts for tests and phys. ther. nothing worked. Then the blood test where we found out. That is the only thing that still hurts her. You found a great site. Everyone here is so nice and knowledgeable. It really helps to know there are others out there going through the same things you are, either as a care giver or a patient. Keep us updated, I will be looking for you. Darlene
  2. Hello everyone! I've been reading everyones postings, and finnally decided to post. My daughter is the one with systemic sclero. She was diagnosed 2 years. ago. She is 18 now. The only reason we found out was her finger was bothering her for about a year. We were seeing an orthopedic dr. and he couldn't fix it, so he sent us to a Rhemuy. Who then did blood tests...and a diagnosis. She has Raynauds, this finger thing, hypothyroidism and a hiatal hernia. The only thing physically that bothers her is the finger. Mentally, that's another thing! My father passed away 6 mo. after her diagnosis, she was very close to him. My best friend 3 mo. later, she was her friend too. So trying to keep her on a up swing is a constat factor in our lives. I also have a 13 yr. old son and a husband that works out of town a lot. We live in sunny So. California. With 2 dogs, 3 birds, and 2 cats. Both kids are active soccer players. We have very supportive family and friends. Though no one knows better about what's going on than all of you. This is such a great site. I read often! Thank you!!!!!
  3. Thank you for the link. I will let my daughter read that before we have further discussion on this issue.
  4. Hello everyone! My daughter is 18 and has been diagnosed with Systemic Sclero. She recently asked if she can get a tatoo. I said no way, because I feel she is still to young to make that decision. I am also afraid that it can bring on more symptoms. Does anyone know if it will? Also, a second question, she is having a problem with her middle finger again. She has had 3 cortisone shots in it. It is hurting her again. She says it feels like the tendons inside are rubbing and pulling. I was making her do strength exercises for them, but now she says that hurts the finger. Any info would be appreciated!! I love reading everyones postings. Everyone seems to try and keep a positive outlook on life even though so much has been thrown at them. I try and do the same for my daughter. You all deserve big hugs! Thank you!!
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