Recently diagnosed with CREST in UK Scleroderma Posted November 23, 2010 · Report reply I was diagnosed with CREST in 1991. Not the end of the world for me but I do have my bad days. I have all of CREST letters, each of which stand for a symptom. I did lose a large toe in 2007 due to Raynaud's Syndrome so you must be careful to cover up. A prescription medication works for the heartburn. I'm in the "donut hole" (of health insurance) at this point and cannot afford the medication. I purchased an over the counter substitute which I will have to use come December so I'm hoping that will work. If not, with the new health care program I can get my other medication back in January 2011. Don't fret, it's been pretty manageable for me. I do get tired easily, the legs don't seem to want to climb the stairs but all in all, there are others I'm sure worse off.