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bloominacres

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About bloominacres

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    Everett, WA
  1. Fatigue is ruling my life !

    Hi Georgette, My fatigue usually comes and goes like Sheryl's. It is with me now though as I needed 3 naps just to get through the day yesterday. My biggest issue with the fatigue is feeling guilty not getting anything done. I live by myself so that guilt is self-imposed. My friends can usually tell when I am having the issues and all offer to help out. I rarely call on anyone for help though, though I really know I should. It is a defense mechanism of mine. Kind of not wanting to let go of what I can do. I just do it at a snail's pace. I am on Plaquenil and have been for 3 years. It did take six months to kick in and help, though I am finding it seems not to be working as well as previously as the joints are killing me also. You may want to consider talking with someone if your fatigue is getting to the point of social hybernation. It is perfectly OK for a few weeks maybe longer for some, but after that may need the added boost from talking with a therapist and possibly medicating, even if just for awhile. Good luck Georgette and warm hugs, Mary B
  2. Womens Problems!

    Hi Lizzie, My gynie just put me back on a low dose estrogen patch as well as using estrogen vaginal cream 3 times a week. I had a hyst 21 years ago and was on hormones until the big hollabaloo about 5 years ago, at which time my FP doctor took me off my hormones. I am sooooo very glad to be back on them even if at a miniscule dose. The night sweats were the worst, followed by hot flashes during the day as well as vaginal dryness. I went in to the doctor because I was spotting. It was because I had no hormonal support to the vaginal tissues. So far so good and the night sweats are just minies now and no more spotting. I have not heard of any reason for not being on the hormones with SS. Warm hugs, Mary B
  3. Cookie Recipe Please

    Hi Sam, Here is a recipe for you. We have made these every year for my past 53 years. Gumdrop Cookies 1 cup of butter or margarine (softened) 1/2 cup sugar 1/2 cup brown sugar 1 teas almond extract 3 eggs 2-1/2 cups of flour 1 teas baking powder 3/4 cup chopped spice drops ( I use whole bag) Cream together butter and sugars. Beat in almond and eggs until fluffy. Add flour and baking powder. Stir in gumdrops. Cover and chill batter for at least 1 hour. Drop by teaspoonfuls onto prepared baking sheet. Bake at 350 for 10 minutes or until lightly browned. Enjoy! Best with a large glass of milk! Warm hugs, Mary B
  4. Disability

    Hi Peggy, I filed right after I was officially diagnosed in June of 04, was denied in November and appealed. Took til May of 2005 and then I was approved. Make sure your doctor is on board and keeping extensive notes. Also when you fill out the paperwork, they really do not give you enough room to explain what is going on. So add some note paper. I typed out my responses and ended up with 4 pages typed. That was on my appeal that I did that. So start that way. Keep good notes on what is happening with you and how this stupid disease affects every part of your daily life. Get down to the nitty gritty so they have no choice but to understand. BTW, I did not use a lawyer, but would have if my appeal had been denied. Good luck and warm hugs. Mary B.
  5. What Do You Do When You Get Sick?

    Thanks for all your replies. I did go see my primary care physician. No pneumonia according to the chest x-ray. He did a nasal swab for flu and I will know on that tomorrow. Just said to continue doing what I was doing and if things didn't improve to come back in for supportive care. Whatever that is. The fever has broken and everything is soaking. Sheesh. I have had a pneumonia vac, but that only covers pneumococcal pneumonia, which is the BAD one. Hopefully I will be well enough to get my flu shot next week, unless of course this is the flu. Thanks for all your thoughts. Warm hugs, Mary B
  6. Hi all, Not to sound stupid, but I am wondering if I need to be seen by my primary care physician. I have just come down with the second cold in 4 weeks. This one is much different in that I have a 101 degree fever, chest congestion and everywhere on my body hurts. I really hate going in and spending the $50 copay just to be sent home to bed. On the other hand, should I be more concerned than usual? I have not had a cold per se for over 5 years, so this is a bit much. I am on Plaquenil, have diffuse with lung involvement, etc. Any advice would be much appreciated. I am getting my flu shot next week, if I am well. Warm hugs to all, Mary B
  7. Sun And Scleroderma

    Hi Lizzie, My doctor advised me to avoid sun unless using an SPF of 50 or higher. So that is what I do. I love the feeling of the sun on my skin and it warms my bones. As long as I use an SPF of 50 or higher, I do not burn and actually take on a nice golden brown. I think it has a lot to do with the meds you are on and whether or not they make you sensitive to the sun. That is my take on it anyway. Warm hugs, Mary B
  8. My Body Is Doing Something.....

    Hi Sam, It may have to do with the Flexeril. On the RXlist site, it listed thirst and sweating as adverse reactions plus a whole ton more!. Just a thought, though I would check with my doctor. Warm hugs, Mary B
  9. Any Good Results From Minipress

    Hi Erin, I have been using minipress for over a year now. It has been absolutely amazing. Prior to using this, my right hand was constantly red, we are talking RED! And of course both hands were like ice. Now on the minipress, my hand color has returned to almost normal and my hands and toes are warmer. I still get Raynauds attacks if my extremities get too cold, though nothing like before. We started with diltazem, a calcium channel blocker, but I ended up being allergic to it and it really did not do the job that the minipress has been doing. Hope it works for you. Do take it easy getting up for awhile as you may get the whirlies. I still get them sometimes. Warm hugs, Mary B
  10. My Toes Are Numb

    Hi all, I haven't been on for awhile but was going to post about numb toes and saw this entry so thought I would post here. 3 toes on my right foot went numb Sunday evening and it has now traveled to my heel. All still numb. No pain thank goodness and the color and temp are fine. Anyone else get this? Should I be concerned? No answer yet from the doctors office, left a message yesterday. PS I do have Raynauds and take prazosin twice a day. Does not feel like Raynauds. Take care Mary
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