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MicheleM

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About MicheleM

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    Atlanta, GA

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  1. Thanks all for the kind words. Shelley --- I'm really curious as to how many others are in the same situation with the low levels of Vitamin D and how much they take per day/week to help combat the low levels. Everyday is a new one and hope is always a part of that! I'll try to be better at posting. xo Michele
  2. Since I'm posting tonight I thought I'd join the Shingles Club too. Just finished a nasty bout and hope they stay away for a while. A line under my bust, another along the left upper hip. Valtrex didn't work so a week later we went to the original "old" medicine and it did work. Thank goodness for that! Didn't even know there was a second med they could use! So glad there was! My husband had shingles of the optic nerve about 33 years ago and was blinded by it for 12 weeks -- very nasty virus!!!! But I am in good company!!!!
  3. It has been ages since I last posted ... I found out almost a year ago that I was deficient in "D" rating a 23 whereas normal was between 40-50 on the blood test my doctor used. I started taking 50,000 icu per week but found that by day 4 I was as lethargic as before taking it. So we upped the dose to 2 x a week, 100,000 units per week. Seems to be helping with the energy levels. Just thought I'd throw that little tidbit of info out for anyone who hasn't been tested yet or has been tested and thinks the vitamin D is not making a difference. Could be if it isn't making a difference the supplem
  4. Hi all. Another update ... "As the Saga Continues"!!! LOL I got a call from Univ. of South Carolina. Seems Dr. Cotton ... the specialist's specialist ... will see me and wants to work on my Sphincter of Odi! He's already scheduled the ERCP (Endoscopic retrograde cholangiopancreatography) for the end of June which seems forever away, but in the scheme of things, well what's another month? We haven't nailed it all down yet, but I'm hoping this is the 2nd half of the good news I've been hoping for! Today was basically pain free ... just the end of the day & that's probably more stress
  5. Susie, I am very glad that I could reach out to you! Mine has been intermittent and before seeing this doctor I had seen 2 other gstroenterologists in the same practice, one wanting me to swallow a pill cam and the other saying it was pancreatitus. Scans showed organs to be fine, liver not perfect, but I'm not asking for perfection!!! LOL Anyway, this drug is taking some time to work, but they said up to 10 days. I can say I have A LOT more energy and for that I am grateful! The other thing the doctor said was to limit protein intake and eat MORE FIBER. I know Gastros push that all
  6. Hi all. It's been a long time since I posted, but I went to see my new gastro specialist today and wanted to send an update. I had an endoscopy and an ultrasound endoscopy a couple weeks ago along with an MRI and an MRA (arteries ... new for me too!) and got the results. Looks like the Scleroderma is still plugging right along (albeit slowly thank goodness) in my stomach and small intestines. He saw the thickening in my stomach and found some benign polyps. Everything else looks to be in good shape and that was very good news. The doctors were thinking I had something wrong with my pa
  7. Sweet - I used Provigil for a long while and like you found it to be a wonderful drug until it wore off, but it's way better than the drop of many other drugs you could use. Like you I only took 1/2 tablet & used it mainly to get through work at the time. I stopped because my heart was showing diastolyic disfunction, but that had nothing to do with the drug, but the drug wasn't a good thing in the respect that it could have been putting more pressure on the heart to function. Just an FYI. Some days I do miss being able to use it :( I'm glad for you that you found something to help!
  8. Maria, I have experienced the same tightening as you along with muscle twitching which can be very bothersome! And just to let you know ... my husband is 1/2 Finnish last name Maki! Huva Tuta!!!! I know very limited Finnish & always had hoped to learn before my father-in-law passed! However, that didn't happen however I do know a couple of words (obviously) and do make some recipes! So it really is a small world! I'm sorry that you've gone through so much with the doctors but they aren't a whole lot better in the US sometimes. Many people - including myself - have been told w
  9. Sweet - I took this drug and after a few days everything felt like marshmallow ... don't know how else to describe it. The pain was gone but so was I!!! It took about a week to get out of my system and then I felt like me again! Maybe painful, but my brain worked as good as it ever did ... if it ever did :) Anyway, I didn't find sleepiness a side effect but the dizziness, well I am a blonde (or was!) was present! I hope it works for you and you get more relief by the time you read this!
  10. Sheryl, Hey! Just want you to know that my brother beat Type 2 Diabetes by carefully monitoring his diet. There are several books that show you how to get your sugars under control. Many things factor into your glucose! I found it great reading as I'm hypoglycemic. I always test low for sugar, but still don't eat a high carbohydrate diet as it surges the sugar to quickly for my body to metabolize! If it's not one thing it's another. I've decided to embrace the changes in lieu of fighting them. It's so much easier to live that way! Hope you are still enjoying your weekend!
  11. I used to get the "gas" when I was little with my extractions! I remember the light mint fragrance! The only thing I know is you should be sure BMW is with you to drive home! Or maybe that's a given! One time I tried to walk out into traffic & my mom kept me safe! I smile remembering the memory!!! Hope you don't fret too much! It's only the dentist!!! :)
  12. It really is fun having something positive to share & I'm with you smurffette - chocolate for any reason! However this is my husband's birthday weekend & it's going to be cheesecake for my calories - smells so good in here from baking! Thanks for all the positive feedback everyone!
  13. I used to have the eye twitching and when it got bad enough (along with the headache that accompanied them days later) to see the dr, well it turns out it was my sign for migraine! You can say I was surprised! Took the meds & it all went away! Some people get auras & apparently my eyes twitch ... usually on the side where the headache was! I know it sounds weird, but for me it was the answer! Now I don't hesitate, so if you have any other sypmtoms with the twitching it may or may not be stress related! Not that we should all be as weird as me, but those of us with Sclero do seem
  14. Lisa, Dr. Fisher is leaning towards muscle fatigue. I didn't really understand, but he said sob can be caused by many things. My PFT showed reduced capacity but transfer was normal. This is much different from past PFT's and he said I was actually improving! But he felt the constricture causing the sob was the muscles around the rib cage. I'll talk with sclero dr 8/12 & see where we go from here. I'm just so happy they don't think the heart is the problem!!! I do have PAH but Dr. Fisher said he wasn't going to worry until I got over 40 sustained - I'm at 34 - and if he doesn't worry
  15. I'm glad to be able to share! Thanks for caring so much!
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