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bowbec

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Everything posted by bowbec

  1. bowbec

    Domperidone

    My gastro doctor just told me my esophagus was paralyzed from the scleroderma. She prescribed a compound drug, domperidone, and Dexilant. Has any one taken these drugs? And if so, did they work. My reflux is so bad I have a chronic cough and I keep tearing intercostal muscles. Very painful! Any advice at all? Thanks! Becky
  2. bowbec

    Domperidone (motillium)

    Wow, Shelley, that's scary. My dr just prescribed it for me. I'm in Tennessee and it is a compound prescription. It will be $60 for 90 pills. Picking it up tomorrow... I think...
  3. bowbec

    Frozen Shoulder

    Do you know anything about a frozen shoulder? Treatment or exercise? Surgery? This has been going on for the past 6 months. I am currently taking over the counter NSAIDS for it. Helps but still lots of pain, Any Suggestions?:emoticon-dont-know: I have diffuse Scleroderma. Just tapered off prednisone. Been off now for one month. I had steroid shot in my shoulder in June but no help at all. I'm going in for x-ray next week. My doctor wants to check for tears and damage before proceeding. Thanks! Becky
  4. bowbec

    Frozen Shoulder

    I had my shoulder x-rayed last week and it showed an impingement. I am going to start therapy next week and then we will go from there. Thanks to everyone for you help! Warm Wishes Becky
  5. bowbec

    Frozen Shoulder

    Thanks for all the encouragement! Especially the info about therapy! Warm wishes to all Becky :emoticons-line-dance:
  6. bowbec

    Whine~ Spoons are Tarnished and Ruined!

    Jeannie, So sorry you're not feeling well. I would defiantly try the Margarita… Lots of Love, Becky
  7. bowbec

    My finger is going dead

    I take 60 mg Procardia XL each day plus a low dose aspirin. Also take 10 mg prednisone. Every Scleroderma/Raynauds case is different. I would strongly suggest contacting your doctor again. ASAP!!! Warm wishes, Becky
  8. bowbec

    Happy Dance time

    Margaret, That is great news! Could Gareth's daily Vitamin D really be the key? I'm trying that! Thanks for your info!!! Hope heart issuse resolve quickly! ((hugs)to both of you)) Becky
  9. bowbec

    Our Sweet Peanut

    Jen, I had been wondering why she never started posting again. Hope everything is OK. Thanks for keeping us posted. Warm Wishes, Becky
  10. Jeannie explained it well. The only thing I could add is: the technician that did mine was male... that was a little strange. How you get good results! Becky
  11. bowbec

    Checking In

    Nina, Glad to heard that things are better for you! Keep hanging in there, we are all going to feel better when spring gets here! blessings You! Becky
  12. bowbec

    Fixed Bridges

    Clem, Hoping at this time you have got all the dental work done. How is the bridge now? Did the dentist re-cement it? How did the other crowns go? Hope all is fitting well now! Smile! Becky
  13. Hey Everyone, Have you every tried corn bags to stay warm? These are home made (of course they also sell online) cloth bags about 22 x 9 inches filled with about 4 pounds of clean feed corn. I received one as a gift last year and this year I made them and gave for gifts. Anyway, you put this bag in the microwave for 3 minutes and it stays warm for an hour or more. I lay it in my lap while I am at the computer and also take it to bed with me. It is great! Better than a heating pad cause you don't have to worry about turning it off! Stay Warm! Becky
  14. bowbec

    Raynaud's at work

    Karen, Check into silk long john underwear. You can get through popular mail order catalogs. Wear the pants, if you can't wear the top, wear 2 lab coats... If she can't see them..ie, underwear... how would she even know? I wear the silk underwear long johns under my uniform because it is not bulky. It is very comfortable too! Stay Warm! Becky
  15. bowbec

    Finger ulcers

    Michelle, I presently have a finger ulcer. My doctor called it a digital infarction. He said the finger looses blood supply and dies. When it is dying it is the most painful. He prescribed Nitroglycerin cream as a topical ointment to be applied directly on the ulcer. I also take procardia 60 mg for my circulation and one baby asprin a day. Keep them clean and protected. Hope this helps! Bless You, Becky
  16. Hello Everyone, I wanted to know the pros and cons of cyclophosphamide versus Cellcept. I have diffuse Scleroderma. My last tests revealed lung involvment. Since then, I have been taking cyclophosphamide(4 months). I am going to be on it for 1 year. I am drinking lots of water. The only big side effect I have noticed is hair thinning. I really can't tell big improvements yet except that the skin on my hands is getting looser and my gastro problems may have improved some , so I must be responding in some way. It is so hard to know the difference in what works and what just happens with diffuse Scleroderma. I will see my rheumatologist for a follow up next month. I don't think tests will be done until the year on cyclophosphamide is up... I really do value the information I get on the forum. Thanks in Advance! Becky
  17. bowbec

    Finger Tips

    Teresa, I have found that those metal finger splints work well to protect the finger from being bumped. Found at any drug store cheap. Don't pick at your fingers and keep antibacterial cream on them. They are a real pain and they seem to take a long time to heal! Bless, Becky
  18. bowbec

    Cyclophosphamide vs Cellcept

    Thanks to all for the information! One thing that I didn't mention was that my doctor stopped the Methotrexate when he put me on cyclophosphamide. I am taking the cyclophosphamide pills not IV. Also fatigue was extreme when I first started but now back to normal. (whatever that is...) I am still working 32 hours a week. (which is full time where I work). All in all I am feeling quite well, but dreading cold weather of course! Thanks again! Becky
  19. bowbec

    Confused

    looking4answers, Maybe you should contact Red about her Doctor. She wrote in a post several days ago... He tells me my rheumatologist doctor is probably the best in the Northeast USA (if you google sclero experts in the Northeast you get only my doctor and one more in New York City.) ... I think you posted that you live in the same area. Hope this helps! Becky
  20. bowbec

    Peanut!

    Jennifer, Thanks for the update!~ ~Peanut it is great to hear from you. Hope to see you back soon! Hopeing for a complete recovery.~ Bless! Becky
  21. Smurfette, Someone else has already mentioned Acifex. It really has helped me. My doctor said after taking things for reflux so long it stops working for us so we need a change up from time to time. Hope you can try it. Bless! Becky
  22. bowbec

    Advice please with diet

    BRAT diet, bananas, rice, applesauce, and toast, is popular among parents when their kids have diarrhea. Tou might try this. Hope it helps! Becky
  23. bowbec

    I am worried - please help me!

    Rainbow, Please look at your glass half full NOT half empty. You have been given excellent advise already. Again, Not everyone with scleroderma has all the symptoms. I have Systemic Scleroderma and I am still able to work, I rarely miss a day. I have 7 grandchildren and I keep them often. (not all at the same time though). Look on the positive side. You are young and every day research reveils new treatment for Scleroderma. I hope this helps. Bless~ Becky
  24. bowbec

    I'm not sure what to think?

    Tonyia, Any results from the tests, blood work, checking ANA's, thyroid etc... Last we heard you were supposed to go back for results... Hope all is well. Bless! Becky
  25. bowbec

    What about the family?!

    Hi Halimahab, You have recieved excellent advice already. The only thing I could add is... Many have ask if there is someone there to help her. If she has religious beliefs, she may get help from her local spiritual leader. Bless! Becky
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