Jump to content
Sclero Forums


  • Content Count

  • Joined

  • Last visited

About nygirl

  • Rank
  1. I have one, my doctor just filled out a script for it and I took it to the DMV. I was on oxygen at the time. I have Artery disease in my legs which makes it hard to walk long distances, also severe Raynauds and SOB. I know what you mean with the car starter, it was my Holiday present from hubby last year. I love it. Brenda
  2. Hi Janey, thanks for the links. I will let you know how the appt goes. I want to ask the doctor about the UCTD. I have symptoms that no one seems to know why I have them. Shortness of breath, chest pains, weakness and fatigue.. It would be nice if I could get answers. Thanks everyone Brenda
  3. Hi Patty, thanks for the reply. I think you misread, I have to go to the rheumatologist for a recheck not redneck, don't worry I do the same thing. I take Estrogen and 1000mg of Calcium for now. My bloodwork was negative for Sclero and lupus but I have a high ANA. I am going to mention the osteopenia to the rheumatologist I am now seeing. I think I am way to young to have it and there has got to be a reason. I also have vascular disease and don't smoke so thats another thing. Thanks again for replying Brenda
  4. Hi Sweet! I receive SSD and my daughters recieve SSI. It takes a long time most of the time depending on the state you live in. It took me 2 1/2 years. My first Application was denied which they say isn't unusual. So I had to wait a year to go before a disability judge to explain my case. You will also get backpay which is when you first became disabled, they will decide when you became disabled. So if you were disabled according to them 3 years ago you get a huge check. I get a monthly check and my daughters get one to. It goes by how much ss you put in when you worked. I believe and don't quote me on this, you have to have worked in the past 10 years. You also get Medicare but you have to wait a few months for that, I can't remember how long. I think 6 months. I have the worse memory so forgive me. I had every single doctors, hospital stays, etc in a big huge folder and took it to my SS building where they made copies of them. Have your doctor write letters stating when you were disabled. If your doctors back you up thats a plus. It doesn't hurt to apply. They review you every 3 years, I haven't had a review yet so I don't know what is involved with that. Just get all of your records, keep in contact with SS because you have to keep on them. Hope this helped. Brenda
  5. My first time posting on the new board so hope I do it right. I have a question on Osteopenia. I was diagnosed with osteopenia (First sign of osteoporosis) last year when my Rhematologist did a bone scan on me, I had a broken rib that I had no idea how it broke so he wanted to see how the bones were. I am 34 years old (to young for bone loss) so I am curious if Scleroderma can cause bone loss. I had mentioned it to the first rheumatologist I had but not to this last one I went to. I forgot to mention it to him. I go back on the 9th for a recheck so I was going to ask then. Haven't been diagnosed with Sclero or anything yet, I am still on the no clue what is going on road. Also what is UCTD or MCTD exactly and how do they come up with that diagnosis? Is there a test for it? Thanks everyone and hope you guys stay warm!! Its getting cold here! Brenda
  6. It was very easy!! No problems at all. Thanks, I like the new board. Brenda
  • Create New...