Jump to content
Sclero Forums


  • Content count

  • Joined

  • Last visited

About LizzyC

  • Rank
  1. LizzyC

    Went To Doctor Today

    Hello! I am very concerned about the advice given by your doctor especially because you are complaining of diarrhea! Zelnorm is specifically NOT to be used when the patient has diarrhea! This is an excerpt from information on Zelnorm from the MedicineNet.com website. Zelnorm Has Serious Side Effects Alert Zelnorm (tegaserod) is a prescription drug for the short-term treatment of women with irritable bowel syndrome (IBS). Zelnorm is intended primarily to treat the constipation that accompanies IBS. (It has never been tested in men.) Summary: The FDA has added new warning information to the label of the drug Zelnorm. Patients are warned to stop taking Zelnorm immediately if they develop rectal bleeding, bloody diarrhea, or new or worsening abdominal pain. These are symptoms of intestinal ischemia in which the supply of blood and oxygen to the intestines are compromised. Zelnorm rarely causes severe diarrhea that can result in dehydration and a need for intravenous fluids. Therefore, Zelnorm also should be stopped if diarrhea occurs. Google Zelnorm and you will find lots of information. Lizzy
  2. LizzyC

    I Think I Have Problem

    Hi Sweet, Another option for cause, is fluid retention in the abdomen (ascites) and this is usually treated by diuretics. Do you check your weight often? If you have a stable weight and it has recently increased by 3-5 lbs you could suspect fluid retention. I have this often, and the feelings you are describing fit my experience to a tee. Hugs, Lizzy
  3. LizzyC

    Who Classes

    Here is the official WHO Classifications for Pulmonary Hypertension: Class I: Patients with pulmonary hypertension but without resulting limitation of physical activity. Ordinary physical activity does not cause undue dyspnea or fatigue, chest pain or near syncope. Class II: Patients with pulmonary hypertension resulting in slight limitation of physical activity. These patients are comfortable at rest, but ordinary physical activity causes undue dyspnea or fatigue, chest pain or near syncope. Class III: Patients with pulmonary hypertension resulting in marked limitation of physical activity. These patients are comfortable at rest, but less than ordinary physical activity causes undue dyspnea or fatigue, chest pain or near syncope. Class IV: Patients with pulmonary hypertension resulting in inability to perform any physical activity without symptoms. These patients manifest signs of right heart failure. Dyspnea and/or fatigue may be present at rest, and discomfort is increased by any physical activity. dyspnea (DISP-ne-eh). Labored breathing; shortness of breath syncope (SIN-ko-pee). Fainting because of a temporary insufficiency of blood to the brain. Love and hugs, Lizzy
  4. Hi Pam, The link I have included is from the SSDI website and give the guidelines for being considered disabled if you have scleroderma. If you meet the criteria, be sure to have your doctor quote and reference the appropriate section in his evaluation and letter supporting your application. With medical notes and test results to support this as well. I was just recently approved for disability, after 2 years of appeals, and all it really took was the judge looking at my records, and then consulting the book and ruling in my favor. All of 10 minutes total time in the hearing room... Good luck with the battle, and don't give up! Lizzy
  5. LizzyC

    Lower Extremity Arterial Evaluation

    Hi Barefut, Yes they are easy and painless, and they give the doctor a lot of information about what is going on... I had one done when I was being evaluated for Pulmonary Arterial Hypertension, to check for clots in the legs, which after they form can travel to the lungs or other organs and cause major problems. Clots are often signalled by pain in the legs so it is an important thing to rule out in your case. Good luck, and let us know how it goes.... Hugs, Lizzy
  6. LizzyC

    Getting To Know You - Archives

    Hello everyone! I live in Washington State, with my husband of 28 years. We have 4 sons ranging in age from 27 to 17, and we are soon to become grandparents for the first time. I just was approved for disability in October, and before that was an administrative assistant. Now I stay home and be a mom as well as enjoying my hobbies, which are reading, crafts and painting. I love country music, and decorating shows on tv. Some of you might remember me from a few years ago, when I was much more involved in the board, and I remember a lot of you too... I went through a difficult year caring for my terminally ill m-i-l, who passed away at the end of this summer. Now, I am back and more in the mood to share and be involved again in the board and all of you. I have Limited Systemic Scleroderma, and Pulmonary Arterial Hypertension. I was on Flolan for almost 4 years and tried Tracleer without success. I have recently switched to IV Remodulin which is working very well. Hope to get to know all of you better. LizzyC
  7. LizzyC

    How Long Have You Been Diagnosed

    Hi Jennifer, I will try to answer your questions... How long have you been diagnosed? I was officially diagnosed in 1994, with CREST, diagnosis broadened to Limited Systemic Sclerosis in 2002, at that time I was also diagnosed with Pulmonary Arterial Hypertension. Do you feel your disease is currently progressing? The Scleroderma itself (the basic symptoms) is not, the lung disease is. Do you feel better now that you are on meds? I do feel much better on the medications that I am on, although none of them is directly for Scleroderma. Do you feel you have it under control? Yes, most days it is well controlled. What is your main symptom now? Shortness of breath with exertion, fatigue, Raynaud's, muscle and joint pain. What was your main symptoms at time of diagnosis? The symptom that started the quest was fingers that would not warm.