LisaBulman

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About LisaBulman

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    Platinum Member

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  • Location
    Massachusetts
  1. Thanks! I figured I didn't have enough titles under my name so I decided to add one more! ;)
  2. Thanks everyone! I am moving along in the healing process. Mostly swelling, not a lot of pain really, which is good. As for Grace, she is one remarkable girl! She only missed a few weeks of school and got back in the pool to start swimming quickly thereafter (she swims competitively.) Although she still struggles with headaches and fatigue she is just unbelievable! Just a few weeks ago she was featured on Michael Phelps Facebook page! It was the day I had my surgery. I was lying on the couch waiting for the kids to come home from school. As soon as they came in I said, "Grace I have something to show you!" She responded, "Mom I really don't want to see your icky knee!" I told her is was a good surprise....when I showed her, she flipped out. I haven't seen her that happy in a long time. Made her year! Hugs, Lisa
  3. Hi everyone! I can't believe how many new faces are here. I have been pretty much offline since February. My daughter Grace had brain surgery, which was out of state, so the surgery, traveling and rehab made it impossible for me to be online. I though once we got home I would be good to go, but the whole experience wiped me out! I did post a while back thinking I would be back to help, but then major computer issues happened so when it finally got fixed I was so excited to be back online only to have Internet issues! In between all of the computer issues I injured my knee. I tore my MCL and injured other parts of my knee. After rehab, it was not better, kept swelling and I was in constant pain. So last week I went in to have it all cleaned up. The surgery was a piece of cake. No pain, just swelling and pain from the swelling. Tomorrow the stitches will be removed and I will discuss the surgery and see pics of the injury inside my knee. I am actually excited to see them. So, hopefully now I am back to post and post news items again! Welcome to all of the new members here! Hugs, Lisa
  4. Hello everyone! I have been offline for a few months now and slowly starting to return to the forums. It has been a crazy few months! I will apologize now, this is a long one! Back in February my daughter Grace, who will be 11 in August, has brain surgery to help with her Chiari Malformation. We traveled to New York to have the surgery done by a Chiari specialist. She did great throughout her hospital stay and her recovery at home. Kids are just amazing and heal so quickly. She was a trooper, cried throughout her physical therapy but knew it was only temporary pain and that she needed to do it in order to get back in the pool and start training again. She is a competitive swimmer, although she is not allowed to dive, she is still amazing in the water. She qualified for states this year. The day before the meet, we were in NY for an appointment. This is when she found out she needed the surgery. We traveled home, got up very early the next day so she could compete. With the weight of the surgery on her shoulders and her having a difficult time breathing (a symptom of her Chiari), she got in the pool anyway. She came in first in her heat and moved up 36 spots in the rankings! Amazing Grace! Now she is recovered, back at school, back in the pool and training. She is still tired and her endurance isn't what is was, but she is getting there. She recovered faster than I did. I had no idea how much her surgery would wipe me out. It took me weeks to get back to normal and catch up on my sleep. Over the past year I had developed a bursa sac on my left elbow that has been infected now four times. About six months ago my doctor suggested we watch it because it was draining on it's own through a tiny hole in my skin on my elbow. I agreed. I went in last month to see him and he said it is now time to have the surgeon look at it because of the infections, calcinosis and now when it drains, it literally explodes and shoots out. I think it is kind of fascinating but gross at the same time! In between all of this, I have torn my MCL in my left knee. We are trying to let it heal on it's own at this point. I go back for a recheck on Friday. Personally I don't think it's going well since my knee still pops out but I will wait to see what the specialist says. With all of this, I am still the maid, chef, taxi driver, master scheduler, dishwasher, and mom! I will try my best to catch up on all that I have missed! Hugs,
  5. We heartily thank Marilyn Oxby for her donation to tackle scleroderma this holiday season. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. Please help us tackle scleroderma by donating now! 12/08/10. (Also see: Sclero Shop/Donate) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. Kirasia: Diffuse Scleroderma (Italy) I have been on sick leave for around twelve months in the last three years, and I risk a fifty percent reduction of my salary, which would be a big problem as I live on my own...Posted 12-20-10. (Italiano) Kirasia: Sclerodermia Diffusa (Italia) Stò raggiungendo I 12 mesi di malattia accumulati negli ultimi 3 anni,e rischio la diminuzione dello stipendio del 50% che sarebbe un ulteriore problema, vivendo io da sola... Posted 12-20-10. There are over 1,000 patient and caregiver stories on the main Sclero.org site. Over 300 of these stories are featured in the Voices of Scleroderma book series.
  7. We heartily thank Gerald Mackler and Simone Rosenblum for their donation to tackle scleroderma this holiday season, in loving memory of Maxine Gail Mackler. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. Please help us tackle scleroderma by donating now! 12/18/10. (Also see: Sclero Shop/Donate) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Deborah T: Scleroderma No doctor seems to help me. My doctor just says I have so many problems its hard to know what to do... Posted 12-17-10. There are over 1,000 patient and caregiver storieson the main Sclero.org site. Over 300 of these stories are featured in the Voices of Scleroderma book series.
  9. We heartily thank Arnold Slotkin for his donation to tackle scleroderma this holiday season, in loving memory of Marta Marx. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. Please help us tackle scleroderma by donating now! 12/17/10. (Also see: Sclero Shop/Donate) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. The nonprofit International Scleroderma Network thanks Melissa Shea for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 12/13/10. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  11. Fantastic news!!! Please give the details when you are up for it! Hugs, Lisa
  12. Moroni: Husband with Systemic SclerosisMy husband was diagnosed with this illness two years ago. It all began with a cardiac arrhythmia. I took him to a cardiologist who performed an echocardiogram, where he realised that his heart had some damage... Posted 12-15-10. (Español/Spanish) Moroni: Esposa de Paciente con Esclerosis Sistémica Mi esposo fue diagnosticado con esta enfermedad hace dos años, se le manifestó con una arritmia cardiaca, lo llevé a un cardiólogo y éste le realizó un ecocardiograma y se dio cuenta de que su corazón presentaba una restricción... Posted 12-15-10. There are over 1,000 patient and caregiver stories on the main Sclero.org site. Over 300 of these stories are featured in the Voices of Scleroderma book series. Submit your story here.
  13. Dental Involvement in Systemic Sclerosis features 20 new pages of information on dental complications that can occur in systemic scleroderma. Illustrated topics include bone resorption, candida, cavities, dental amalgam, dental fears, dental implants, dentures, general dentistry, microstomia (small mouth), mouth sores, periodontal disease, photos, scleroderma, sensitive teeth, stories, TMJ problems, tongue and oral cancers, trigeminal neuralgia, and xerostomia (dry mouth). Posted 12/13/10. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  14. The nonprofit International Scleroderma Network thanks Wendy Frazier for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 12/10/10. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  15. The nonprofit International Scleroderma Network thanks Wendy Frazier for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 12/10/10. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.