Lady Deb

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Everything posted by Lady Deb

  1. Sadie, I'm glad that you are doing better and that you are home. I know your cat missed you. I'm hoping that those antibiotics work very quickly. Deb :)
  2. Happy Mother's Day to all! It's rainy in Cincinnati. I'm spending the day studying for a mid-term in statistics(ugh). I hope everyones day is what they want it to be. Deb
  3. Hi Phyllis, Welcome to the group. I agree with everyone when they say take it one day at a time. This is a great group and they know how to help through the over-whelming times and positive times. I must say that I found the spoon story very inspiring and the pity party very funny. Sometimes laughter is the only way I get through some things Smile there's a lot friends here for you to lean on. Lady Deb
  4. It seems like it has been forever since I felt well. Every little thing has made me short of breathe and all the joints hurt.I need to watch how much NASAIDS I take due to the Methrotrexate. I had two tests done . The spiral CT didn't show anything except calcification from previous pulmonary embolisms I had. The 6 minute walk test showed my pulse ox. drop to 89% at the end and I got dizzy. This comming Friday I am having the cardio-pulmonary level 1 stress test. I just seems like all of these things are taking forever.Sometimes I don't feel like I am pulling my weight at work and that my staff feels like I should be doing more. Somedays I wish that their was a magic pill that would made everything feel better. I know their isn't. Thanks for letting me vent. Debbie
  5. Way to go!!!!! I 'm proud of you. Deb
  6. Thanks everyone for all the support. It has meant the world to me. Friday Is the big test. Hopefully some kind of news will be found out. I'm going to take a day a time this week. working and going to school is what I've got to do. This statistics class is were most of the stress comes from.Anyway, I'm thankful for all of you. :rolleyes: :) :D
  7. Happy Birthday to you! Happy Birthday to you! Happy Birthday , Sadie. Happy Birthday to you. Hope it was great. Deb
  8. You can do it! :)
  9. I hope that you are doing well without the cigarettes today. Hang in there! Deb
  10. Here's another nurse. I graduated in 1976 with my associate degree in nursing. I was 20 years old. I could give patients drugs but I wasn't old enough to buy liquor.Ha! I started out working in a nursing home for 3 years and I did learn alot. I went to work in a hospital setting as a med-surg nurs for two years and them found my love in nursing - maternity nursing. I started working as a a mother-baby nurse on the postpartum unit for 9 years. From there I went to work in Labor and Delivery for 16 years. This is what I love the most to see a person take their first breath, to see life begin, to see families elated to see their new love one. A year and a half ago I went to work on our high-risk pregnancy unit with the moms who are sick with their pregnancy. Now I am the assistant nurse manager. I have worked in the same hospital going on 29 years. We deliver close to 7000 babies a year. It is a busy place. I hope that I can get better and continue to work there doing what I love. I am now in school working on getting my BSN in nursing which will be completed in 2010. :D
  11. Lady Deb --- Well my name is Debbie and Deb is the newest version of the name. Everyone calls me Deb now. Accually, my name is Deborah but noone calls me that except my mom when she is mad at me. Lady came from me trying to have some pride in myself. (Just a little self-esteem)
  12. I'm proud of you. You can do it!! As a ex-smoker, I'm going to be here to cheer you on. Hurray for you and your buddy!!!!!!!!
  13. I'm very happy that you have a doctor who can help you. It gives us all encouragement to be advocates for ourselves. Thanks for being such a great role model for us.!
  14. In March I wrote about going to a hematologist for shortness of breath and fatigue. Well, last Monday I went and he decided my iron wasn't low enough to order IV iron. I went back to my regular doctor on Tuesday and he referred me to a pulmonologist. He made a statement that maybe it wasn't psychosomatic since I had bad swelling(pitting edema) in my lower legs. And I'm taking Lasix 40mg twice a day. This has been going on since Feb. and I feel like I've been pieced out to different doctors. I have been in the nursing field for 32 years and I believe in nurses and doctors and the entire medical field but this experience has shook some of my beliefs. I know that I'm not making this up regardless of what the test result show. So I have seen in the past months My regular doctor, cardiologist, rheumatologist, regular doctor, hematologist, regular doctor and then now a pulmonologist. I have had blood tests, cardiac echo, pulmonary function, more blood tests & urine test. This week I am going to have a 6 minute walk test, cardio-pulmonary stress test and spiral CT done. I did feel that my visit with the pulmonologist went well. He didn't treat me like I was psychosomatic. I'm still working (somewhat) and going to school one night a week. Deep in my mind I hope that it's not anything that can't be treated. I trust that I can continue working. The one thing that I'm trying to do is take it one day at a time, one doctor at a time and one test at a time.
  15. Last summer my doctor put me on Methotrexate. Is this a good drug for slowing down the scleroderma? That's what they told me it would do? Deb
  16. Thanks everyone! Tomorrow I'm going for two of the tests. I'm thinking positively.
  17. I am in the process of getting my BSN in nursing. The class I just finished was Healthcare informatics. We had to pick a website and write a paper, give a speech and do a power point on it. I picked this website since it is such a great help to me. The speech was last night and it went well. I got an A on the speech and the power point and an A+ on the paper. All the people in my class are already RN'S. So now they know of a website to go to to help them teach their patients and to let their patients know where they can go to to get information. I just want you all to know that I always sing praises of this site and all that I have learned and the support that you all give. Thanks!
  18. Today I finally got to go to the Rheumatologist concerning the fatigue, shortness of breath and low iron binding levels. He said that he is referring me to a hematologist because he feels like I'm not absorbing the the iron due to the scleroderma. He feels like I'll be getting IV iron. At least I'm starting to get some answers and results. :D
  19. I have been on Methrotrexate since last summer. I have been fatigued since January and have been short of breath for four weeks(on exertion). After normal cardiac echo and pumonary function test, I found out that I have low iron-binding tests. I have been on one iron pill a day for years. Now I'm on two. Anyway, my questions are is this normal with Methrotrexate? How long until I feel better? I do have an appointment finally with the Rheumatologist next week. The other two doctors that I have been seeing are my cardiologist and regular doctor. I'm just tired of being tired.
  20. Thanks for all the responses. Truman, I hope everything goes well at your visit today. I can't wait to hear what is said. I take 6 2.5 mg Methotraxate tabs every Sunday. My visit with the Rheummatologist is Friday. One thing my regular doctor said was that if the additional iron pills don't work I will possibily receive IV iron. There are a lot of questions I have on Friday. Sometimes going to so many doctors is irratating. I feel like I'm being "pieced out".
  21. Hi, My name is Deb. I was diagnosed spring of 2006. It was really long and drawn out. I has Raynaud's for years. And my doctor said yea that what you have. Then I was getting digital sores on my finger tips every winter which I thought it was the Raynaud's with the hand soap we used at work. So started going to a dermatologist. March 30 2006 I stopped smoking (HURRAY) But three weeks later I was admitted to the hospital with chest pressure. I had sick-sinus syndrome which made my heart rate go below 30 when sleeping. So a the age of 50 I got a pacemaker. When I went back to the dermatologist he put two and two together and sent me to the rheumatologist. After the test I was diagnosed with CREST syndrome. I have the Raynaud's, GERD, hardening of the skin, something with rounding, and tightening of the fingertips. I also have arthritis. Sometimes it becomes to be too much. And I don't think people understand. I work and can take care of myself, thankfully. Has anyone been put on Methotraxate for it? I will be nice to talk with people who understand. Thanks for this site.