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About kellyA

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    Senior Bronze Member
  1. I get pedicures often and lately had to ask them to stop using the razor to scrape off the dead skin, days after it would hurt so bad. Last few pedicures I went without the skin scraping and it was wonderful. When I brought this up to my Dr. she said Sclero rarely goes to the feet and sent me for x-rays of my heels for spurs, which were negative. Thought I was crazy or getting old. KellyA
  2. Hello, Got my blood tests back last week, my primary doctor sent me a letter asking me to call her and schedule an appointment to see her, she noted on the letter that my white blood cells are high, my thyroid is overactive and my cholesterol is high, and sugar is high as well. So here's my question can't my white cells be high because I have sclero? I have so many doctors that my head spins, I have a cardiologist, pulmonary, endo, rheumatologist and primary, and the best part is they never talk to one another! This is crazy... Anyone have any stories to share? KellyA
  3. Hello, I live in Central Jersey also (mercer county to be exact) I go to Philadelphia Thomas Jefferson University (I have systemic Scleroderma) my friend also has sclero and goes to Univ of Penn. either one of these are fine, send me a private message and I can give you names.
  4. The same thing happened to me last year with work, last April to be exact I reduced my hours to 9 to 3, with a doctor's note stating that I could only work 6 hours a day 5 days a week. I first had to use all my sick, personal and vacation time, which got me through October. Starting November 1st I will be docked an hour everyday but it is so well worth it, my office is allowing this for 1 year, after that I need to make a decision either go back full time or retire (I have 25 years in but I'm only 43 years old) I will get full medical benefits for family but I will take a hit on my pension bec
  5. I had mine checked a few months back and it was 16, so my doctor sent me out pills for a month, after that I took a D supplement and 2 months later more blood work revealed that is at 16 again, I received a copy of my bood work the other day (the doctor did not call me and say I needed pills again so I started taking supplements on my own.) I also have been sitting in the sun every chance I get without sunscreen so my bod absorbs the Vitamin D. Kelly in NJ
  6. Over the weekend I ate had a little to much sodium, my fingers are really swollen, especially one finger in particular, one of the moms at my daughters soccer game pointed it out to me and said it looks really swollen and asked if I was okay. I'm drinking tons of water to flush out sodium. Should I call my doctor because one of my fingers is bigger than the rest? Is this normal with sclero? My hands do not hurt at all hard to bend the one that is swollen, I feel like a pain calling her, just want to make sure it's nothing serious that I'm missing. Kelly A
  7. A quick story about sclero awareness. Recently my dad was at the cemetery putting flowers or something on my moms grave, there was a man not too far from my dad visiting his wife, the man came over and started talking to my dad, he then asked my dad what happened to my mom and he proceeded to tell him, then my father asked him what happened to his wife and he replied, "She died of a disease that no one ever heard of," and my father pressed him and he said scleroderma, my dad replied, "I am very familiar with this disease my daughter has it." KellyA
  8. Can totally relate I myself am going through early menopause with hot flashes, but I'm so cold at times... KellyA
  9. I just bought a large bottle, however, I started eating Fiber One bar every day with a cup of coffee, now I do not need to take the miralax...
  10. Hello all, As you all know I have sclero, well my best friend tested positive for sclero antibodies her numbers were 254 and her doctor said it does not mean you have it, is this true, but she is sending her to a see a rheumatologist. kellyA NJ
  11. Hello, Just wanted to see how things were going with the stem cell and how you were feeling, KellyA
  12. I never had extractions but I did have the rooting and scaling done which is very painful and some bleeding, maybe you need to see a dentist that understands the whole sclero thing. I have a very small opening and he works well with me and it turned out fine. I too was concerned with infection, just make sure you call if you have any problems., Good luck keep us posted! KellyA
  13. Thanks to all for your postings, I'm starting to feel better, the vitamin D pills are kicking in. I do think maybe I was depressed who wouldn't be after losing my aunt to sclero - it made me re-evaluate my own life. The past few days I've had more energy--the cold weather here in New Jersey does not help. I really want to go to an island and sit in the sun all day. KellyA
  14. My doctor called me back after I posted this, she said that my vitamin D is most likely making me feel this way, I didn't mention that I lost my aunt to scleroderma last week and I also may have a little depression in me, my doctor told me to call her if things don't get better. She also ordered a echo of the heart just to be on the safe side. Thanks to everyone who replied to my postings. KellyA
  15. I need some help here, my recent blood work came back very low on Vitamin D, so my doctor sent out a prescription for one pill once a week. Lately I cannot pickup my 4 year old she is 34 pounds, something like weak muscles, I feel so bad but I'm so afraid of dropping her if she wants me to pick her up I tell her I need to sit on a chair. I know my hands are getting worse, Raynaud's at least 5 times a day and the skin is very thick. I asked my doctor is there is something she can run to see if this is progressing and she said no. I just joined a gym, I know I need to exercise but with wo
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