Jump to content
Sclero Forums

nan

Members
  • Content count

    649
  • Joined

  • Last visited

About nan

  • Rank
    Gold Member
  1. Costochondritis

    I had this years ago. I thought I was having a heart attack. It is very painful. I had it before I was diagnosis with scleroderma.
  2. Systemic and hypothyroidism

    Definitely take your medicine if you have a thyroid condition. You are right to make sure meds don't interact with thyroid medicine. When I was anemic I had to take a huge iron pill daily. I took it the same time as my thyroid medicine. I just kept getting more tired. I finally went to the doctor and my thyroid was barely functioning. I found out that iron affects the absorption of thyroid meds.
  3. Fatigue Issues

    Red, I too suffer from fatigue. I have always attributed it to having Sjogren's, Scleroderma, and Fibromyalgia. I also have very low blood pressure. Have you had your thyroid checked? I have underactive thyroid and the iron I was taking for anemia (after a major bleed from watermelon stomach) interfered with the absorption of my Synthroid. Anyway, my thyroid level was off the chart. The doctor didn't understand how I could walk. I have been to a neurologist for headaches and dizziness. He thought I had orthostatic intolerance, but I just have orthostatic hypotension. I am having trouble sleeping at night due to cut back on sleep med because a side effect can be lowering blood pressure. I also am in more pain lately. I am constantly battling fatigue. Sometimes I will be out and it feels like somebody has let the air out of me like a balloon losing all of its air. I didn't help you much, but do know that you aren't alone. Fatigue is a pain. Take care, Nan
  4. Tngrits, I too have CREST. I am not a doctor so you could ask your doctor about this. I had restless legs for about a month. It turns out that I was anemic. Restless legs can be a sign of low iron. I have watermelon stomach which causes me to bleed internally. Restless legs are now my cue along with black stools to know if I am bleeding. Again I am not a doctor ,but it sounds like calcinosis is what you are dealing with. Hang in there and you can private message or email me with any other questions. Nan
  5. Had my PFT today

    Kamlesh, Do you think it could be because of H1N1? Didn't you have trouble with breathing when you were sick? Just a thought. Nan
  6. Bloodwork Results

    Hi, I have CREST and Sjogren's, so you can have both. I think it is a good question for your rheumatologist to see if he thinks you also have CREST. Take care, Nan
  7. Allergies and scleroderma

    Warmheart, I have allergies and I get allergy shots. I have had bad allergies since birth. So for me allergies came first. Good luck and I think it would be great if you could see a rheumatologist. Take care, Nan
  8. Little toe problem

    Summer, I too have CREST. I have experienced that type of pain in my toes. Mine hasn't been bad enough that I can't walk, but it is quite painful. Mine doesn't happen all the time. I don't really know what to tell you to do. I would definitely bring it up again with your rheumatologist. Take care, Nan
  9. Disability Question

    Craig, I am so sorry. Get going asap on your appeal. I was told by my cousin who is a lawyer to not get a lawyer until you have been denied 2 or 3 times. Hang in there, Nan
  10. Severe Fatigue

    Hi, I too have CREST and Sjogren's. Sjogren's by itself can cause extreme fatigue, as can scleroderma, put the two together you get really bad fatigue. I am not a doctor, but that is what I have heard from my doctors and from researching the two. I am lucky in that I don't work, so I can nap as frequently as I like. Take care of yourself, Nan
  11. Slow Motility/constipation

    Patty, I too have CREST and I have had similar problems. I was supposed to have a colonoscopy three years ago and I did all of the prep, throwing up after half due to gag reflux. By noon the next day I still hadn't had a bm. I called in and they scheduled me for the next afternoon and gave me more stuff, but I still wasn't completely cleaned out. GI doctor said it was probably the best I would ever do. Lately, I've stopped using anything and I am going ( not every day), but the stools are very small and hard and I bleed a lot with my bowel movements because I strain so much and the stools are so hard. I take two stool softeners daily. I don't want to go to my GI doctor because he says there is nothing else he can do. I think it would be great if you got in to see your doctor. My problems have been bad, but not that bad. Let us know how it goes. I am so sorry that you are suffering so much. Nan
  12. Disability Question

    Craig, It sounds like things are going well. I think it's good that you are addressing your depression. Denial is so much easier sometimes. :) Nan
  13. So happy to find you all.

    Di, Welcome to the forum! You will have great support here. I am so sorry that you are suffering from such serious complications. I hope that all meds will help you. Take care, Nan
  14. hot head

    Theresa, This happens to me, but I am going through menopause. I don't know if there is a connection to scleroderma. My scleroderma doctor attributes it to hot flashes as does my gynecologist. Sorry I couldn't be of more help. Nan
  15. Prepatellar

    Alice, I was told that I have chondromalacia patella in both of my knees. The way I understand it it means softening of the cartilage in the knee. My knees crunch. I am not a doctor, but that's what I understood from my doctor. Take care, Nan
×