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SpaceysChick

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About SpaceysChick

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    Waddell, Arizona
  1. Thanks Sara! I really appreciate the updates. Love you Lisa! Happy to see you're doing good!
  2. thank you so much for the updates Sara. I really appreciate knowing that Lisa is getting better. I miss her and worry about her often. She's constantly in my thoughts, as are you and her family. Thank you again, Sarah
  3. delk, I really think it depends on the person and how much of the cyclophosphamide you are getting. I've recently finished with my 5th treatment, and looking for one more at least. The day of the treatment I've been fine, no more tired than I always am, except once the zolfran (the anti-nausea med they give me) wears off I start to feel nauseous. but I just take the zolfran again and I'm good until bed time. I usually have a bad night that night, hard to sleep or up every hour to go to the bathroom. but then for the next few days I feel fine. I get my treatment on a Monday, and about Friday
  4. Thanks for all the comments! It was a post that I did on on my blogs, and I haven't posted anything here in such a long while and wanted to update you all on what was going on here. Sorry if it was a little too detailed for some of you, but yeah. I can get going. lol.
  5. Monday was my 5th treatment. everything went just fine, and normal. I had the appointment at 9.30. For me this is early morning. This requires getting up at 8.30 at the latest. yeah... so not my idea of fun. especially when I didn't sleep so great the night before. First bag of mesna went thru fine, then got the zolfran, and then the nice big bag of cyclophosphamide. About half way thru I started feeling a little fuzzy. my head just didn't feel normal. not really dizzy, and I wasn't nauseous. just fuzzy. The last of the bag went thru and then the second bag of mesna, and then some saline. s
  6. i haven't gotten a lip cramp yet, but I do get the hand cramps. I think it's kinda cool that you can watch your hand muscle cramp up. but yeah... painful Hope your feeling better!
  7. i'm sorry to hear that you're in pain. And, hopefully, you're still on track for the transplant. Hope all went well today!
  8. I know I'm probably a little late with this, but what peanut said... I have pulmonary fibrosis and am currently doing cytoxan treatments and my doctor will not give me a treatment if I'm a little sick. So yeah... get in touch with your doctor. It may be an infection and not just a cold, and that is not a good thing!
  9. Hey guys! I use those thin dollar store gloves, one size fits all, and then a pair of mittens over that. so my hands seem to stay pretty warm when I'm out and about. Hope that helps!
  10. way to go lisa! I'll keep you in my thoughts. Thanks for doing this with us!
  11. First off: taxes, I don't make enough to have to pay. So I don't have to worry about that. Second: um... oh yeah. I just received a letter in the mail stating that I still disabled and that I would still receive benefits.
  12. i'm with the majority. I'm right handed and my right hand is effected more.
  13. I've had an issue with my toenails. They are very hard, and as they grow they curl under. Also my big toes hurt. i've never put the two together, i thought it was just a me issue and have never brought it up with my doctor... maybe I will this next treatment day.
  14. I did the same thing for a while... Then once I was put on a calcium beta blocker they healed up on their own and I haven't had problems in about 6 months. so yeah... *shrugs* keep asking your doctor.
  15. I have been told that I have limited (didn't know this until a few months ago, was never told this until recently). I also have pulmonary fibrosis, and am on oxygen 24/7
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