ElizaJ

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About ElizaJ

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  1. I have the tendon rubs too in both wrists and spine. I have not found any information about it either and the doctor said take OTC pain relievers! yippee! You gotta love this disease!
  2. Thanks so much y'all. I have all the information I need now and I feel better for it. I thought my eyes were getting worse fast. I went with the progressives and am still adjusting but find that each day is better. I will check out the plugs and do use drops for the dryness. Again thanks to all of you, warm hugs and wishes in this new year! Eliza J
  3. I was wondering about something that has been bothering me alot. I just went for annual eye check and the doctor said my vision had changed and I got new glasses, eeewwww bifocals!!! Anyway, she also diagnosed my Sjorgen's. What I was worried about though is that it seems my eyes have gotten worse, more blurriness. I can't see a darned thing clearly even up close! I know that with Sjorgen's the eyes are dry and so is my mouth, but does all the other stuff come with Sjorgen's? Also, will punctal (sp) plugs help my eyes enough for me to go get them? Will it help with the blurriness? My eye doctor suggested the plugs but I was not sure. All this new stuff is scaring me silly. I have not been able to take medication either for fear of a reaction to it. Anyway, I would appreciate any info on the plugs. Thanks again!
  4. Hi Marie: I am very sorry that you are dealing with this crummy disease on your own. I have tried dong that and it is hard, hence why I am here. My hubby took a while to get the idea of what is going on but he finally did when he was with me alone one day and I needed a shower. I have to have help with showers and he found out just how much the disease has marked my life and body. Now he is much more understanding and helpful. Thank Goodness! My mom is the one who I had trouble with. She was quite unfeeling in regard to the diagnoses and told me to take the meds and get over it! Oh well it aint happened yet, but she is waiting. What a hoot that is now! Hugs to you Marie. Everyone here has been very nice and very forthcoming with advice and cyber hugs. Always a kind word for you. Bless you in your journey. Eliza J
  5. Hi y'all - and here I felt like my hubby was the only who did not really understand. I can't say that he does not care because he does but he ignores me alot. He never asks me to go anywhere at all. He does not talk to me about this illness at all! It is like if he ignores it, it will go away. It hurts me alot that he won't ask me to do anything. He takes off with his friends when the whim strikes and leaves me and the children at home as if it is the most normal thing in the world. The worst part is I am supposed to like it because he "can blow off steam". Well what do we do? He just came in a minute ago and said oh honey by the way I am going to a New Year's Eve party of sorts, a poker game with the guys and I won't be home, ok? Well what in the world do you say to that, No you can't go!!!!!!!! Sometimes, I just dont think the good things about him outweigh the jerkiness he exhibits the other times. Sorry to spill over the page here but I just had to get it out. Thanks for listening and good luck with those significant others everyone. And by the way, HAPPY NEW YEAR, to all of you!!!!!!
  6. Thanks Nan and barefut, I really need the kind words. I was wondering about something that has been bothering me alot. I just went for annual eye check and the doctor said my vision had changed and I got new glasses, eeewwww bifocals!!! Anyway, she also diagnosed my Sjorgen's. What I was worried about though is that it seems my eyes have gotten worse, more blurriness. I can't see a darned thing clearly even up close! I know that with Sjorgen's the eyes are dry and so is my mouth, but does all the other stuff come with Sjorgen's? Also, will punctal (sp) plugs help my eyes enough for me to go get them? Will it help with the blurriness? My eye doctor suggested the plugs but was not sure. All this new stuff is scaring me silly. I have not been able to take medication either for fear of a reaction to it. Anyway, I would appreciate any info on the plugs. Thanks again!
  7. Hi there I am a Texas girl myself. I am from outside Houston to the west. I just this forum the other day too. You are not alone!!!! I am having some of the same symptoms that you are having. I get the bad indigestion, the foot pain, the joint pain, skin itching and on and on. I have a fabulous rheumatologist here and am grateful to her and the other wonderful doctors I have. The only thing we disagree on is me not taking the meds they want me to take. I have had so much trouble with the pain I am beginning to rethink that decision. My days can be awful enough that I have to use either my cane or walker. I have to have help taking a shower and getting dressed. But my good days are good. I am glad you came here, so far everyone has been awfully nice and welcomed me with open arms. There is lots of information to be seen here. I have read a lot of stuff. People here are great. They have lots of tips on dealing with all of the same problems we are having. Take care and maybe we can visit again sometime. ElizaJ
  8. Kmull, I am sorry you are having such a bad time. I can understand what you are going through. It doctors 8 years to diagnose me. And the diagnosis finally came when I got with a rheumatologist who listened to me, read my files, and did the proper blood work. She took 18 tubes of blood!!!!! I thought I would die! But it was worth it. She not only was able to diagnose the SD but she is the one who diagnosed the OA as well. I love my rheumatologist and would not trade her for anything in the world. The reason is this, the first time I saw her she told me I was not crazy nor was I a hypochondriac. She listened to everything and said now lets find the problem. She said that she would be completely honest and work hard for me if I would be completely honest with her. That led to a really great relationship! I am hoping you will find what is going on and to be with the best doctor possible!! Hugs to you. ElizaJ :)
  9. Thanks a lot Pauline!!! I have a lot of questions but am not sure which to ask first or if I should wait until I am done with my next rheumatologist appointment and see what she has to say about it all. Take care everyone and hugs to you all!
  10. Hi Sweet and LisaBulman: Thanks for the wonderful welcomes. Y'all have been so nice. I feel very glad to be here!! I plan to visit everyday. The hugs are awesome I sure need them. Lisa, the syringomyelia, my nuerologist believes that it was caused by the daily physical abuse I received as a child for many years (my back was a involved). Then when I was 18, I was rear-ended by an 18 wheeler and that furthered it, also brought it to the forfront. By the time I was 38 and had had two children, it was really starting to cause problems. Just thought it was disc herniation and nothing else. When I started losing control of some of my bodily functions, I went back to neuro and he did MRIs and found it that time. I have MRIs yearly to keep a check on the progress. I am sorry for your little girl, I will keep her in my thoughts. Thanks again for the warm welcomes everyone. ElizaJ
  11. Hi Patty, I am new to this still but can relate. It was not a sibling but my own mohter that was impatient, uncaring, and not hearing. It broke my heart when she said "Take the medicine and it will go away". That was about the scleroderma. When I told her about the syringomyelia - well I might as well have been talking to the wall. So, I just dont talk to her about any of it any more. It is easier to carry the burden than to be hurt continuously. I am not saying that you should do the same, I am just saying it is my way of dealing with this problem. It still hurts but I dont know what else to do about it. I know I care about all of us and how we feel. I also know that I cannot change my mom's way of thinking so I dont try anymore. I just roll with the punches when she is here. Bless you. ElizaJ
  12. Hi Sam: It seems I remember you on another board and you were waiting to get your hearing. I am so glad that you finally got it! I am hoping the decision to be in your favor. Bless you. ElizaJ
  13. Wow!!! I did not expect such a fast and wonderful response. Thank you so much for a nice welcome. I will be back as often as possible. I am trying to learn so I can help myself and not be scared half to death. Thank you for the links that will help alot. This is a frightening disease. It is one thing to see what is happening to you but to not be able to see it, worries me silly. Anyway, thanks again Heidi. Bless you. ElizaJ
  14. Hello to everyone. I was diagnosed in September 2006. I am still new to all this. I have Scleroderma, OA, Fibromyalgia, and Syringomyelia as well as Generalized Anxiety with Deppression. Most of the sclerderma is inside involvement. I have some skin involvement the doctors call morphea. I have something called Sjorgen's too in my eyes and mouth. I came here in hopes of finding knowledge, support, and information. Support mostly as I am learning more about this stuff and myself than I think I really wanted to know. For now, I dont have too many questions. I just wanted to introduce myself and try to find support. I get so scared sometimes because I do not understand all that is happening and this gets the anxiety and depression flowing and it is a vicious circle. Thank you for taking time to read this.