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catherine parker

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  1. catherine parker

    Thanks To Everyone Who Replied

    I used the word "weird" to describe it, too. At least there is someone else out there who has had something similar so I know I'm not going crazy. My family doctor called me a "good case," meaning that things happen to me that he's never come across before in 20-something years of practicing medicine. Do you wish the medical schools would teach more on the illness? Sometimes I get angry that other life-threatening diseases get so much publicity, but then I catch myself and realize other people are going through a lot, too. I was diagnosed in April of 1998 and it hasn't been too bad until now. I guess I should be grateful because other scleroderma patients have had it a lot worse than I have. I am trying to be positive. With Divine help, I'll get through this recent episode. Thanks for replying so quickly. Cathy
  2. catherine parker

    Thanks To Everyone Who Replied

    I am really touched by the messages I received showing support; it made me cry. Since I posted last week, there has been a new development in my condition that I don't know is related to scleroderma or not. On Sunday morning I woke up with no feeling in my left foot, sort of like pins and needles. It scared me so I called my family doctor, who sent me to the ER. They did an ultrasound looking for blood clots and found none. I have been limping ever since. When I went to the dermatologist yesterday, I told her about it and she thought it may have been a clot that dissolved by the time I got to the hospital and that's why it didn't show up on the test. I went to my family doctor after the dermatologist who is stumped but doesn't think it's related to the scleroderma. While I was in his office, he called a neurologist who suggested a medication for me called Lyrica and for me to get an EMG test in the next three weeks. I'm feeling miserable because now I have limited use of my right hand because of the ulcer and I'm walking with a limp, which is also slowing me down. I was prescribed nitroglycerine ointment for the ulcer, which is supposed to get the blood flowing to the finger, and the doctor said it could take up to two months for it to heal. If anyone has had anything similar with the numbness, I would love to hear about it. Again, thanks for all the messages. I'm at work now, so I can't respond to everyone individually, but soon I'll get back to each and every one of you. Cathy
  3. catherine parker

    New To The Forum

    Hi, everyone. Today I registered in Sclero Forums. I was diagnosed with scleroderma in 1998 and have been struggling physically and emotionally ever since. My contact with other patients is very limited so I was glad when I saw the website. Now I know I have a place to go to talk to or listen to others who are just like me. Right now I am having a real problem with a digital ulcer on the index finger of my right hand and have an appointment next week with a dermatologist to see what can be done. If anyone has been through digital ulcers, I would love to hear from you. Cathy Parker