Sarah

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Everything posted by Sarah

  1. HI I must chime in on this one. I am not a dr. but upon reading your entry you speak of quite a few nutritional defincienies, including iron and B 12. These are very common deficiencies in celiac disease, an autoimmune disease of the intestines. Another side effect of celiac disease is neuropathies with no explanation. You may suggest having a celiac panel blood test run if you have not already. I am not a dr. but I do have celiac sprue and I know form personal experience and from speaking with many people that it can present in many ways, with many rheumatological symptoms. It is often overlooked, but it is not uncommon. Anyway some food for thought. I hope you get to the bottom of it soon, it can take so long with autoimmune at times. Don't lose hope, with the help of a good rheumatologist you will get to the bootom of it. Oh btw- you don't need a rheumatologist to run the celiac panel blood test, your primary care physician can order it easily. Sincerely, Sarah.
  2. Hi Danelle, I can definitely understand what you are talking about. It is very normal to feel that your life is totally out of control when everything that we have taken for granted, our health, plans for the future, even emotional stability, has been put into jeoporady. I am sure there are days when eveyone on this site just feels like they got the rug pulled out from underneath them! Not just once, but over and over again in the ups an downs of autoimmune illness. I don't have scleroderma, but I have an autoimmune problem. They are very ard for other people to understand. But if you listen you will find others who deal with chronic illness. It may not be sclero, but they can still be such a source of help for you. I have friends with endometriosis, and herpes and the like that have provided alot of insight into dealing with the daily demands of a disease plus functioning in a non stop world that really values health and vitality over any percieved from of weakness. The other thing I have found is that autoimmune problems actually are vey common, there are people with arthritis (quite common), diabetes, thyroid, MS..all of these are autoimmune and very common illnesses. Speak with them, you can mutually learn from eachother. Personally, I really only talk about my problem with people who have illness. I don't find that other people understand and having a chronic illness has taught me to just focus on what I need to function and get through my day happily and healthily and to just leave the rest. The work issue is hard. I am a stay at home mom, and my son really just doesn't allow me to feel sick much of the time. I have to get up and go even if every bone and muscle hurts. Sometimes at the end of the day I am truely so tired out from him I just cry, but I wouldn't change it for anything. Find something you love! It is healing in it's own way. Sincerely, Sarah.
  3. Hello all, It has been quite some time since I wrote a post on this thing. I have been SO busy keeping up with my son who is now a toddler. He is 13 months old and the light of my life. His name is Eli, but he is also called mouse. I am a teacher and worked for four years as a subisitute teacher in special needs classes and for a year as an ESL kindergarten teacher. My husband and I have been married for almost four years now. He is my best friend, except when he gets on my nerves-lol. I am Canadian, and just moved to the US-Seattle speifically, just six months ago. It has been afairly major adjustment. I have travelled a bit, done some hiking in the Candian Rockies, been to the maritimes and Egypt. I began having health issues just after my son was born last year. It started with chest pains and body aches. Then I got sceritis in my eye that has been ridiculously stubborn and then worsening body pain. I am undiagnosed as yet, but the eye thing is enough for me to deal with really. I have been told everything in the past year. I have been told I could have RA, lupus, eye cancer, vasiciltis, Sorjen's syndrome, and even post partum depression! Nothing firm yet in that area though. As of now it is scleritis, celiac disease, undifferentiated autoimmune disease and I am obese from massive doses of prednizone. Has been a scary ride! Anyway that's a little about me and how I ended up here...should I even be here? I do not have slceroderma- but the people are so nice! I am going to celebrate the holidays at home in Canada soon, and in the new year I will be attending a very intense weight loss program avaliable in Seattle so I will be busy getting at least one of these diseases ( the obesity) knocked off the list! Have a Happy Holidays everyone. It has been great reading your posts. If you have scleritis, uveitis, or another inflammatory eye disease please contact me.
  4. This new site is neat!!! I will bring candy apples to this little party. Not just any candy apples, the ones that are covered in caramel, chocolate, nuts....hmmmmm..yummy.