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About Karenlee

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    Senior Silver Member

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    Long Island, New York USA

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  1. Hi Mando, Sorry to hear you had a rough go of it today. You'd think in these advanced times of medicine there would be an easier way to draw blood rather than the barbaric needle. I say that now, because since having sclero, I am having the same trouble with blood draws. The nurse actually blamed the fact that my vein "moved" as the reason she couldn't draw blood. Anyway, my hubby is on Hydrochlorothiazide, and from what I understand it is a water pill, so since you fasted for the blood work, then took a water pill, you may be dehydrated and that's why you are feeling bad. Try to drink
  2. Wohali, I notice my arms get very itchy after a shower. All most like pins and needles type itch. I slather on some lotion and that seems to simmer things down. Also, my back between my shoulder blades itch like mad. I do have a hyper-pigmentation spot back there, but don't know if the two are related. Since I don't have a back scratcher, I find the best tool in the house is my spaghetti grabber thing that has the teeth on it that picks up spaghetti. Oooooh what a releif. Or I do the ol' rub my back up against the corner of a wall. Oatmeal baths are great too. Just process some o
  3. This is very interesting. I don't recall any actual trauma to my hands that set off Raynaud's, but I was at the computer at work 24/7 and had the blasting cold air conditioning directly on me. I know that's not a trauma but it could have sped up what was going to happen eventually anyway. B)
  4. Purr it could be your meds. Not sure what you are taking, but if it's fine in the morning, then you take your pills and get the bitter taste it's probably that. I was on an anti depressant a while back and it left an awful taste. Also, are you taking vitamin supplements? That could be the culprit too.
  5. Hi Clementine, I have the rough skin on the outside of my right index finger. It started up just around the same time as my sclero. There's a teeny bit on the oustide of my left index too but mostly on the right handed finger. Feels rough and callous like. Does not feel tight or waxy though. I do feel it's related somehow since it started when my knuckles started to get thick. Also feels like a eczema I would think so could be that. Karen
  6. Thanks for all your replies. I suppose it's just the disease that gets a bit uppity sometimes. Thankfully it doesn't last long just a bump in the road. I thought I was having a flare in a flare Lol! :P Karen
  7. Hello everyone. I'm going to try to word this as coherently as possible so I do not sound silly. Ok, I consider my episode with CREST/UCTD a major flare. Currently being treated with medications, but notice that every once in a while, I will feel very puffy and swollen (from the inside out) and when laying down I can actually hear my pulse inside my head, like the pulsing in my ears. My right index finger will get especially swollen, shiny and itchy and red. Also I'll feel extra stiff, more than usual. A couple of NSAIDs usually do the trick, and the mini flares last no more than a day.
  8. Shelley, you have such a way with words, thank you for your insightful posts. You take the time to really dig deep and come up with thoughtful and insightful replies, I know I appreciate your input. I learn something new every time I come on to this forum thanks to all of you. I may not post a lot anymore, but I am still here. Karen
  9. Chefkat, Good luck with the PT. I would be careful with the OTC joint therapies and ask your doctor first. Some of us with this have too much joint tissue so taking something to build it up may not be a good idea. I think that is more for people with thinning cartilage, although I could be wrong. Karen
  10. Chefkat, I have CREST and have tested positive ANA. It was pretty high at first but has gone down since being on Plaquenil. Scl70 is also positive but I was told by my doctor to take that with a grain of salt. I have Lupus like antibodies but tested negative for actual Lupus. (which is totally confusing I know). I have the looping capillaries visible to the naked eye so no test was required for that. Karen
  11. Margaret, I had an old heating pad from a back injury that I use for my hands when I get into bed. When I bought it for the injury I never imagined it would get so much use Lol I think a heating blanket is a great idea. How is Gareth doing? The Plaquenil is helping? I so hope he is responding well to it. It's one of those meds that require a lot of patience. I feel a difference from when I first started (last April) but still not limber enough to paint my own toes yet :P I tried last week and the best I could do were racing stripes down the sides lol Love, Karen
  12. Awww thanks for thinking of us. I've been sort of laying low, just doing my thing. I still come on and read up on everyone now and then. Just went thru an information overload and needed to take it down for a bit. Doesn't mean I don't think of you all. Tru is doing well. I speak to her regularly. Wishing you all happiness and pain free days. :)
  13. Oh Karen, I'm so sorry for your pain and trauma at the ER. I can't begin to imagine what you are going thru, and I have no advice other than to follow up with your Rhumetologist and new GI. I hope it doesn't happen again. I'm glad your hubby was right there with you to help at the hospital. Sometimes we need an extra voice when no one will listen to us. I suppose in the meantime, just be careful what you eat and try to rest. Please keep us posted. (((hugs))) Karen
  14. YFchoice: Hey, since it's physical therapy maybe the insurance company would cover your travel expenses ;) Smurfette: Thanks for your input. I still have the bottle of Prednisone because I had to stop due to an allergic reaction, so yeah probably not the brightest idea to take one. I was just desperate for releif. I took some ibuprofen today and that has helped a bit. If it stays this bad though hubby said he'd leave work and take me to the doctor. I'm going to take a wait and see approach. Purr: It could be. I really don't know. I thought it was a muscle pull/strain/spasm but I could
  15. Peggy, You are not alone. I'd forget my head if it weren't attached to my shoulders. I keep lists for the grocery store (I think most people do that) and keep 3 different calendars, 2 on my computer and one on the pantry door in my kitchen, so there's no chance of forgetting a date or an appointment. Even when to give my cat flea drops :D My Dad had Alzheimers too and yes that does make me wonder if someday I'll get it, but for now I think it's just not working (my last job was challenging and kept me sharp) and my brain getting a bit mushy. That's great that you are reading again. Th
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