Karenlee

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Posts posted by Karenlee


  1. Razz,

     

    Thank you for sharing your story. It's fascinating how different yet similar everyones experiences are. I'm thrilled that you didn't give up until you found a doctor that you felt was your advocate and on your side. It saddens me how many stories I've read about doctors blowing off symtoms or just being plain uninformed about the disease.

     

    You seem like a fighter which is a great attribute. Even in the face of this baffling disease. An inspiration to me.

     

    Sincerely,

    Karen


  2. Hi Leslie,

     

    Glad to see you came back and started posting again. I did the exact same thing you did. Dissapeared off the forum for a while, as I was going thru a bout of depression. I think it's a great idea to talk to someone about how you're feeling.

     

    Keep on keepin' on. We're all here for you.

     

    PS: I think bathingsuit season was just invented to torture females. :P

     

    Karen


  3. Sadie,

     

    So glad you posted, I was thinking about you a lot lately and wanted to know how you are doing. Glad to hear you're being cared for properly. If you're up for it at any time, we can do our "support trio" with me you and Linda.

    Shellys been eating up a storm as usual. She spends a lot more time outside too now that the weather broke. And I have a suspicion that one of our neighbors is feeding her because she's getting awfully chunky Lol

     

    Take care and keep us posted. We all love you!!!

    Karen


  4. Tru,

     

    Glad to hear you are feeling releif today. I too know the double edged sword of Prednisone. (I had a wild allergic reaction to it and stopped after a week), but that week I felt 16 again and could do back flips. Then as soon as I went off, back to being rickety and stiff.

     

    So, yes I'm glad it brought you releif. I hate to hear it when you aren't feeling well.

     

    Karen


  5. Welcome Razz,

     

    I never was a clean freak, but now I just have an excuse :lol:

    I'm glad you found us. You sound like you have such a good upbeat attitude, which is priceless when it comes to dealing with sclero.

     

    I look forward to getting to know you.

     

    Karen


  6. Ho bookworm,

     

    I take Prylosec and pay about $25 for 6 weeks of tablets. You say Omeprazole is the same thing and you found it for 5 cents per pill. Would you mind sending me a pm and tell me where you found it? I really could use that saved money in my pocket lol

     

    Thanks

    Karen


  7. Christy,

     

    The only thing I give Shelly is the monthly flea/tick drops on the back of her neck. It seems to work. I've used a few different brands and they all seem to do the trick. I can't imagine why one cat would get it worse than the other. Maybe it's not from fleas and from something else, or a skin problem. Shelly was very itchy and scratched herself to the point where she'd develop scabs. I changed her food to a formula that helps with dry sensitive skin and she's been 100% better since.

     

    If you think that may be the problem, feel free to pm me and I'll give you the name of the food.

     

    Good luck.

    Karen


  8. Tange,

     

    Strange that the same doctor that told me I was high risk is the same one that is now pushing the issue. :huh:

     

    And thanks for the offer but I think I'll pass on the peeing doll. I can imagine hubby coming home and seeing me with it. He'd think I'd finally gone off the deep end :P

     

    Karen


  9. Hi Karen, my name sake ;)

     

    Yes, I probably should be letting others in and I'm sure if it were reversed I'd be incesnsed that they didn't do the same. I'm somewhat of a coward in that I cannot bear to see fear on my loved ones faces. That to me is a sign that there is something to be afraid of. Maybe in time, when the dust settles I will be able to have someone with me, but for now, my coping method is to be a loner.

     

    I remember first trying to explain my diagnosis and the pannick that my family and loved ones conveyed. It really didn't help me emotionally. I didn't want them to pity me or fear for my health. I'm sure it's a form of denial and until I can wrap my brain around what's happening, I just have to deal with it in the only way I know how.

    I absolutely appreciate their concern, and love them dearly for it.

     

    And for some strange reason, the more people that are in the exam room with me the more freaked out I get. My last appointment with my rheumatologist, there ended up being 3 people in there hovering and touching, taking blood, asking questions, bending my hands, taking blood, BP, notes, questions, and I really felt like I was going to pass out. No matter how many Xanax I pop before I go in, I'm just in a fog and a nervous wreck. Go figure, I'm a complete mess. I must sound like a complete head case to you guys for admitting all this, but it's the truth and I can't hide from it. Maybe I'm just cowardly. :(

     

     

    Again, thanks for the wise words. I truly appreciate it. I'm so happy that you have a pro-active hubby that cares for you and is involved.

     

    Warm hugs,

    Karen


  10. Tru,

     

    Nothing like waiting until the 11th hour to change your mind! Lol!

    Thanks for the advice. I do want to wait a bit longer. Something inside me tells me it's the right thing to do. Even if it means I'm risking running out of time.

     

    I know this is a deeply personal topic, and to lay it on you guys is a bit much but I know I can always turn to you all. I deeply respect all of your opinions. I do talk to hubby and he is very supportive, but it's just not the same ya know?

     

    Karen


  11. Thanks for your input Sheryl. You raise all valid points which is why I want to wait a bit longer to let the meds do their work on me. I don't want to be a sick tired mommy. I'm also not convinced that it would be harmless (to the baby) to stay on the meds while pregnant. But the catch 22 I am in is my age. You see the pickle I'm in. I do know how exhausting and draining it can be. I have 6 nephews and one neice and I see what my sisters go thru. I also see the joy they bring (along with the heartache). My oldest nephew recently peirced his ears and didn't tell anyone. My poor sis almost had a coronary. Lol

    So, yeah I do have a LOT to think about. And I don't appreciate being pushed by my OB on the issue to "stop dragging my feet" and "what are you waiting for? you're not getting any younger". :( Beleive me, I know how old I am. I don't need him reminding me everytime I speak with him. :P

     

    Karen


  12. Oy, where do I start? I told you guys that my trio of OB, rheumatologist, Invitro specialist had all deemed me too "high risk" right now to start the process. So, I get a phone call yesterday from my OB. He had run about a barrel full of blood tests back about a month ago and the results just came back. He ran so many things I could barely keep up with writing down what he was saying (on top of him having the hiccups while he was telling me) but I managed to get out of him C3 and C4 compliment level, DNA something or other and something about coagulation. Anyway, he said it all came back excellent and would not affect pregnancy. (I asked him to mail me a copy of the bloodwork so I could read and try to make some sense of it). Anyway, he asked me to have a consult letter sent from my rheumatologist saying ok to go ahead with the pregnancy process. And I said, well I just saw my rheumatologist yesterday and he said I'm not ready yet and even if I was ready, he'd have to take me off the Plaquenil. My Gyn disagreed and said that's not necessary and that he's had patients give birth to healthy babies while on that medication. He was also sort of pushing me to hurry up because of my age etc. (mind you. HE'S the one that said I am too high risk and sent a letter to my rheumatologist stating that). I am going to wait for the blood work that I had drawn Wed. to see if there's any improvement then I suppose take it from there. I am so leery about stopping the Plaquenil this early in the game as it has JUST started to help me. I don't know what to think. I feel like each doctor is pushing me in a different direction. They are telling me 2 different things.

    Anyway, sorry for the blathering. Just trying to sort this out in my head and it helps to type it out. Thanks for listening.

    Karen


  13. Sam,

     

    Sorry your feeling down. Hope youre feeling better today. I know what it's like to be alone, as my hubby travels a lot. (he's away now as a matter of fact). But you get used to it somehow. I know I spend WAY too much time on the computer Lol

     

    Are they planning to come back for a visit again soon? I'm sure they can't wait to come back for more yummy food and fun.

     

    Keep your chin up. :)

     

    Karen


  14. Hi Suzie girl! So glad to hear you are pain free and keeping us updated as much as you can. You know you can email me anytime to chat.

    As Margaret said, the body has a better time at healing while not having to adapt to pain, so I am so glad the pain medication is bringing you releif. You are my hero!!

     

    Big hugs!!!!

    Karen


  15. LMS,

     

    Although I'm sorry for your official diagnosis, you can now at least start your course of action with meds and proper testing to keep on top of things.

    I started Plaquenil treatment about 8 weeks ago, and have seen some positive changes, as I am sure you will too. The one peice of advice I can give it please be patient with it, as it takes some time getting into your system.

     

    Like Tru said, there are stages you go thru when first diagnosed. I think I skipped the denial and anger and went directly to fear, but that does subside once it sinks in. There are many here who are invaluably helpful with information and moreso, support and caring.

     

    Ask anything at anytime. We're all here for you.

     

    Karen