Frustrated by this disease in Sclero Forums (MAIN) Posted March 12, 2009 Hi, m/o Ashu and purplelibrarian. You both have good points to make, but ultimately, as purplelibrarian, says, what happens to your body is a personal decision. We can't always be sure that the information we are getting is accurate for our circumstances, nor can we expect anyone else (including the doctor) to know all the mitigating factors. The best we can do is to stay informed and make sure you are heard. And of course, you will keep looking until you find someone who will listen, but even they might not have all the answers. Good luck with your ankle, purplelibrarian. And Dr Damayanti you have no way of knowing for sure whether the lack of physical therapy is what caused the crippling. Sometimes the progression is strong as in the case of your daughter and we can only try fight it as best we can. As a parent, though, it is hard not to have some guilt about the part we may have played.