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Glenwood

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About Glenwood

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    Newbie

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  • Location
    Larkspur, CO
  1. July is proving to be a very sad month. I am so sorry to see this news on Suzie. Having just lost my mother 2 weeks ago to this disease it just saddens me immensly to think another beautiful soul has been lost. 36 is much too young to have suffered so long. I know that I am still new to you all but please know what great respect I have for what you do here. Be at peace Suzie and say hello to my mom Sophie. Glenwood
  2. Having just lost my mother to this, my heart goes out to you Sadie and everyone whom she touched. It sounds like you are in the same peaceful state that my mom was in when she passed and I am so grateful that she is now pain free. I wish the same for you. Peace, Glenwood
  3. Hello all, I'm really glad I saw this topic today. I haven't posted in awhile since early July when my mom went under hospice and I regret to say she passed away on July 10th. My dad tried to keep her at home but it became too much for him and she started fading too fast when she wasn't getting any fluids. It's been really hard for me to read and communicate. Anyway this issue of heredity has been coming up with me over the past couple of years and my mother and I talked about it previously but I found recently how secretive she's been about her illness. After my hysterectomy last year
  4. Thank you all for your thoughts. Mom has been under home hospice care to the extent her insurance will cover for the past 3 weeks. This morning my dad decided he could no longer care for her on his own so he is transferring her to a facility. She will not take her meds (which include zanex for the anxiety) and is thrashing at him to stay away from her. She appears to be moving into non-lucidity so he has decided he needs help. Hospice here will not do anything with IVs with "in-home" care, so hopefully if she goes to the facility we can get an IV in her and hydrate her and get her some meds to
  5. Hello all, It's been awhile since I've had or taken the time to check in and when I did today I found the postings from Sadie. I am so sorry Sadie that you are going through this, but so glad that even through your struggles you are so upbeat. I'm glad too that you have found hospice such a welcome relief. I had posted a few months ago that my mother was in the hospital with accute kidney failure and I was looking for support on what to expect. Since that time she has progressively gotten worse, hidden a lot of the "real" issues from my brother and me and a week before a planned trip to Haw
  6. My mom also has had significant intestinal problems that you described as well as related to her esophagus. Last year she had diarreah and vomiting so bad she dropped to 87 pounds. For the past few years they have been treating her with prilosec and other stuff but last year it stopped working. Her new rheumetolist started her on a therapy of on again, off again antibiotics because he said her colon was just so full of bad bacteria. So continues to eat a lot of yogurt now and then when the diarreah flares up she goes on the 10-day antibiotic regimen. The doctor also found the vitamin D and I
  7. I know my mom has suffered with her gums and teeth in general for the past few years. She was told to use a waterpic toothbrush to help stimulate the gums. The receeding and soreness is apparently due to bone loss in the teeth. Overall she was told the sclero created much bone loss and osteoporsis and has been taking heavy doses of Vitamin D. Excesive vitamin A, and maybe E may also be contributory. Glenwood
  8. Thank you all for your kind words and suggestions. I actually spent more time researching after I joined and found and reviewed some of those suggestions. I am happy to report that she came home from the hospital today with acute psnomonia. Her kidney and PH levels actually improved over the day. It could be that the steroids they injected, against her will when she was admitted to the ER, may have spike her levels. Although out of the woods for right now on that front she has to get her strength back from the broncial muck now. She's very annoyed and frustrated and I found to be no comfort
  9. Hello everyone, I'm new to the forum, actually just located this today. I also found out recently that my mom has been keeping her increasing creatinin levels to helself and my dad and technically she started into acute failure months ago. She is now about 4.5. I had no idea what this meant so I started searching for answers today and decided to join the forum to seek any additional insight on what to expect. I say "expect" because she refuses dialysis. She was diagnosed with scleroderma almost 20 years ago now. A few years later she went into a sudden kidney failure and we were told to prep
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