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Nina

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About Nina

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  • Location
    Claymnont, DE

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  1. Sorry for the delay ~ I spent Friday and Saturday in the hospital. Once again I had at least a dozen doctors looking at me and offering opinions. Everything from the blocked salivary gland to a bad case of cellulitis of the face! Well, they decided to give the antibiotic intravenously and they also discovered my potassium was very low also; probably caused by the fluid pills I take. At any rate ~ I was in the right place! Thanks so much for urging me to call. I've been very fortunate these past two years; this was my first hospital visit since '08. They released me because I "looked so good" a
  2. I'm calling now... And thank you so much for tha spell check tip! I'll be back after my call. Nina
  3. Hi Sam ~ I realize this is a little late, it appears that your post was in May. I would love to know what outcome you had; did you go to the doctors? How were you diagnosed? I'm experiencing somewhat of the same problem. Although, my swelling is getting worse, even after starting a antibiotic. Would love to here more about your outcome. Nina
  4. Hello all ~ my name is Nina and I've been away TOO TOO long. I've had several reason why, and to be honest none of that is important now.When I was here last, I believe I had just had my stomach operation (gastrectomy) and recovering relatively well. Now I have a "strange" new problem. It seems I have a saliva duct that has become clogged. Does anyone know anything about this? I first noticed a knot on the side of my face, located on the joint of my jaw. When I tired to open my mouth it hurt in the joint and the knot got bigger. By the time I got to the doctor's (just my PC) the swel
  5. Hello All , I'm here on the right (East Coast) , and I'll take any hand that is there! What a wonderful day to spend with such warm, sweet friends!! Much love, Nina (DE)
  6. Oh Penny ~ you tell such an entertaining story. I've been in that same exact place a few times, sad to say. Thanks so much for the grin... Much love, Nina (DE)
  7. You girls are WILD ~I tell you ~ WILD!!! You've got me dancing now... Much love, Nina (DE)
  8. Oh Jeannie I am so very sorry. You have been such a wonderful support. I wish I could help in some small way. I will most definitely keep both you and your friend in my warm thoughts. Wrap your arms around yourself and feel the love I'm sending! Much love, Nina (DE)
  9. Welcome Jill and Cindy, So glad you have found our wonderful site. There are an abundant number of caring, compassionate, bright, cheerful, helpful, positive, supportive people on this forum. Don't ever be hesitant to post and believe me, there are no questions that are dumb nor should any question or concern ever make you feel embarrassed. We are all in this thing together!! Cindy, you are impressive, marathons and triathalons? Just keep on running, don't let this diagnosis even enter your mind. It may very well turn out that the Raynaud's is the worst of it for you, you just nev
  10. Wow, guys... I am amazed once again, I reach out and find a sea of supportive, caring WONDERFUL friends. Thank you all ~~ Just reading all the posts brings a smile to my face for sure!! I'm still struggling, but since I seem to be such a survivor ~ I've managed to get from one day to the next. Perhaps I should tell you that I have been in and out of (face-to-face) counseling for most of my life. Since my early 20s ~ when I realized that I had a problem with depression. At any rate, I had been in counseling for the past 7 years pretty steady. Unfortunately, the co-pay got to be
  11. Hello to all ~ it's nice to see so many members posting. I just wanted to check in to let members know what is going on with me. I had my EDG/APG done on Wednesday at Thomas Jefferson University Hospital. The very GOOD NEWS is that my hemoglobin is at 12 ~ a number that I have never seen! For this I am quite thankful. The doctor reported that my "spot" (G.A.V.E.) looked a lot better than it did in December. He also thinks that things should go well for me now. I should check in with my local gastro doctor (which I am going to change) and keep an eye on the hemoglobin. I'm
  12. Welcome back Peanut! I have followed your journey thanks to your wonderful friend who kept us informed. It is a blessing that you are back with all your positive energy! You are amazing. Hope you continue to grow stronger and stronger with each passing day. Much love, Nina (DE)
  13. I was diagnosed with Fibromyalgia in 1996, or thereabouts. I think I continue to have "cycles" of Fibro ~ but I do wonder if it wasn't just Sclero. all along. Right about now, I'm not real sure about a whole lot. Still feeling pretty down and out ~ BUT as always, I'm thankful for this site and all the wonderful people associated with it. Much love, Nina
  14. Stef, Please, please, please don't let this "individual's" behavior toward you make you feel anything other than disgust for his lack of compassion and his obvious loss of interest in his chosen profession. I have had very similar experiences, with the difference being ~ I didn't have this forum to turn to. I DID walk around for YEARS thinking something was "wrong" with me mentally/emotionally. NOT a good feeling, as I am sure you know. I had three different rheumatologists; three different gastro. doctors; and two different Primary Care doctors -- and I'm still not completely ha
  15. Cheryle: Did the GI doctor tell you if the foam was realted to the yeast infection? Glad you got something for the yeast ~ hope that clears it up. Much love, Nina (DE)
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