kelowna52

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About kelowna52

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    Washington

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  1. Good afternoon to everyone. The chest pains are gone and all of the tests came back normal. As usual I'm confused, I guess eventually they will figure out what is going on with me. I see my Eye doctor on Monday, another field test, I failed the last one. I don't know what I will do if they won't refill my Plaquenil. Have a nice afternoon and take care. Jackie
  2. I really don't know what tests he has ordered, his nurse just said they were testing for quite a few things, so I really don't know at this point. Thank you for responding to my message. Jackie
  3. Thank you so much Shelley and Nina for your replies. I didn't think it was reflux because I do experiance that often. This seemed differant from that. Maybe it was just spasms, who knows I will wait and see if anything shows up in the blood work. Thanks again. Jackie
  4. Hello Summer, I have Raynaud's and I have a lot of skin discolouration on my legs, bruising under the skin and plaque like lesions. My hands seem to be purple most of the time now and they seem to be very warm a lot now. I find that strange with Raynaud's, because I understood that your hands turned purple when you get cold. I have a lot of body pain, migraines, fatigue, chest pain and the list goes on and on. My doctor's here in Washington state still can't figure out what's happening with me. Anyway I don't know whether or not that is much help to you but I do understand what your feeling, frustration for me big time. Jackie
  5. Good morning everyone, I have been having freqent pains in my chest area, left side and left arm. I have had pains in the chest area off and on since 2001. I seem to remember someone here stating that that goes along with this disease. I had a EKG and chest xray yesterday and that was okay. I was just wondering if anyone here has this problem. Jackie
  6. Hello to all of you. I have been away from this site for quite some time. I was wondering if that search engine that was spoke about awhile ago to help raise money for Scleroderma is still out there. I would like to use it if it is and so would alot of others I know. If possible could one of you let me know what it is. Have a nice evening. Calm Jackie 2
  7. Hello Gina, I totally understand what you are going through. Over the past 6 years it's been a roller coaster for me as well, but since I had my Gall Bladder out at least the reflux doesn't seem to be as bad. I do have to watch what I eat though. I moved from California up to Washington, and I have had trouble with doctor's as well. It can be very frustrating to get a diagnosis. All of my doctor's in California agreed I had Scleroderma, here there on the fence about the whole thing. So day by day I put up with all of these syptoms, like you mentioned and go on with my day. Good luck to you and believe me this website is wonderfull. Jackie S.
  8. Hello Peggy, I haven't been on for a while, nice to hear your son is home enjoy every minute with him. Take time for yourself and don't get overly tired. Have fun and take care. Jackie S.
  9. Hello Sharon I totally know where your coming from. This all started for me with a biopsie done on my feet that determined I had Morphea. I have all of the same symptoms you do and more. I am 54 years old but I don't have Diabetis. I do have Raynauds. I have bad migraines alot of body pain especially in my neck and shoulders. My skin feels extremly dry and itchy alot. I have all of the same GI problems you do. I did have my Gall Bladder out recently which seems to have helped the acid reflux somewhat. I see quite a few doctors about various problems, so I totally know where your coming from. Good luck to you. Jackie S.
  10. Hello Barefut, I'm sorry to hear your having problems. I don't know if I can give you the name of this med that my surgeon gave me for bad reflux or not, but here goes. After my Gallbladder surgery I was in really bad shape with reflux. My surgeon called in Sucralfate 1 gram tabs, generic for Carafate, they really worked for me. I hope you can get some relief soon. Good luck to you. Jackie S.
  11. Hello Sam, I saw your post on Lyrica, and I just had to get back to you. I was wondering how long you have been on Lyrica. I have been on it for about 3 years now. Originally, my Neouro., put me on it for my Migraines, now they say it works for the body pain as well. I have been taking 150 mg. 2 to 3 times a day now. When I first started taking this med I thought it was a wonder drug. It helped my migraines almost instantly. I am finding now it helps sometimes, I guess, but I still have alot of pain. I get alot of pain in my neck and shoulder area as well. Do you feel your pain is in the muscles or joints? I find it is hard to tell sometimes. My rheumatologist said, In Scleroderma you don't get body pain all over. Do you get pain all over or just in certain areas? My Doctors here in Washington are uncertain if I have Scleroderma now. In California my rheumatologist, Gastro. and Gyno. all agreed that I have Scleroderma. So I don't know. I have had quite a bit of weight gain from the Lyrica as well. Thanks and take care. Jackie S.
  12. Hello Angie, I'm so sorry your having problems. I totally understand where your coming from. Eleven years ago, two differant Dermo's did the punch biopsies on me and both came back as Morphea. Ever since then I have had many changes happening to my body, but not to much on the outside. The morale of this story is I have been fighting with all of the doctor's I see here in Washington, because none of them here think that I have Scheroderma. I went through alot of testing at UCLA in California and the end conclusion was definately Scleroderma. So I understand, this desease is very tough to diagnose. I definately have Raynauds, my hands turn purple alot lately. I have alot of GI problems, and my hands and feet are very tough and hard. The biopsies were done on my feet, that's where it all started. I also have alot of body pain and bad migraines. I definately have figured out that you have to be patient, because the Doctor's treat the symptoms as they come and they don't want to give this desease a name so they say MCTD, Mixed Connective Tissue Desease. Well, good luck to you and I hope you find your answers. I would definately seek out another opinion. Jackie S.
  13. I am sorry to say, I have also gained weight, but not from the Plaquenil. I was on Lyrica for about 2 1/2 years. I have gained about 30 pounds and I am having a terrible time losing it. I found, I just have wanted to eat pretty much non stop, it's very frustrating. Well, good luck to you. Jackie S.
  14. Thank you Margaret, that's good to know. I decided to start taking my Plaquenil again, better safe than sorry. Thanks again for the heads up. Jackie S.
  15. Peggy, I can't even imagine, what you and so many other families go through. I will keep you and your family in my thoughts. Take care. Jackie S.