janey

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Posts posted by janey


  1. Clinical Trial Starts In Autoimmune/Inflammatory Diseases Shift From Rheumatology To Asthma And COPD Disorders.

     

    A comprehensive review of clinical trial starts in the autoimmune/inflammation therapeutic area found that over a one year period that focus has shifted from rheumatology to respiratory diseases, COPD and Asthma saw the highest levels of activity, and inhaled combinations therapies dominate respiratory developments. Medical News Today. 05/10/11. (Also see: Clinical Trials)

     

    These items were posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.


  2. The nonprofit International Scleroderma Network thanks Ingrid Bruce for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 05/18/11.

     

    These items were posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.


  3. The nonprofit International Scleroderma Network thanks Anita Nelson for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 05/18/11.

     

    These items were posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.


  4. The nonprofit International Scleroderma Network thanks Anita Nelson for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 05/18/11.

     

    This item was posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.


  5. Survival in progressive systemic sclerosis with pulmonary involvement: a single-center experience in Istanbul, Turkey.

     

    The objective of the current study was to determine survival and factors that affect survival in progressive systemic sclerosis (SSc) with pulmonary involvement. Zuhur F. Rheumatol Int. 2011 Mar 5. (Also see: Pulmonary Involvement)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  6. Jean,

    Welcome to ISN and the Sclero forums! I'm sorry to read that you have had so much trouble with Raynaud's and it is causing you so much pain and so many problems. I'm not familiar with the nerve stimulation treatment that you are doing, but if it helps and is being conducted by a qualified physician, then go for it. I sure hope it helps you.

     

    Just in case, there are other successful and a few unsuccessful treatments for Raynaud's. I'm sure you have tried many of them since you've been dealing with this for so long, but just in case, you might check out our Raynaud's treatment page. You might find something new and directly related to the problems you are having. Please let us know how the treatments work. There are a lot of people on this forum suffering as you are with extreme Raynaud's so the sharing of information is imperative.


  7. Pernicious Anemia is Under-Diagnosed.

     

    Pernicious anemia is an autoimmune condition that may go undiagnosed for years. Symptoms of poor digestion and anemia evolve gradually, so that patients get used to them and fail to seek treatment. Linda Fugate PhD. EmpowHER. 05/12/11. (Also see: Anemia)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  8. An Analysis of Connective Tissue Disease-associated Interstitial Lung Disease (ILD) at a US Tertiary Care Center: Better Survival in Patients with Systemic Sclerosis (SSc)

     

    Survival in patients with SSc-ILD was better than in patients with other CTD-ILD, potentially related to routine screening for and early detection of ILD in patients with SSc at our center. Robert S. The Journal of Rheumatology vol. 38 no. 4 693-701. (Also see: Pulmonary Fibrosis Mortality and Prognosis)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  9. Exercises for People With Pulmonary Fibrosis.

     

    Certain lifestyle changes, such as exercising, can help to increase your quality of life, improve the functioning of your lungs and reduce your overall stress levels. As exercise also can make you feel short of breath, consult your doctor prior to beginning any type of exercise program to make sure the specific exercises are appropriate for your condition. LiveStrong. February, 2011. (Also see: Pulmonary Fibrosis)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  10. Spontaneous skin regression and predictors of skin regression in Thai scleroderma patients.

     

    A spontaneous regression of the skin fibrosis process was not uncommon among Thai SSc patients. The factors suggesting a poor predictor for cutaneous manifestation were Raynaud’s phenomenon, diffuse cutaneous type while early cyclophosphamide therapy might be related to a better skin outcome. Chingching Foocharoen, Clinical Rheumatology, March 24, 2011. (Also see: Skin Fibrosis)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  11. Gil,

    Congratulations on having successfully dealt with this disease for 30ish years! That's very encouraging to all of us. :woohoo:

     

    I was diagnosed in August of 2003, 10 months after the onset of "known" symptoms - so about 9 years for me.


  12. Juvenile scleroderma: experience in one institution.

     

    While scleroderma is rare in children, the prognosis of systemic scleroderma (SSc) is poor but better than for adults. The prognosis for LS (localized scleroderma) is usually benign, however, the skin may become progressively indurated and it may not only be a skin disease. No progression from LS to SSc was observed in our study. Lo CY, Asian Pac J Allergy Immunol. 2010 Dec;28(4):279-86. (Also see: Juvenile Scleroderma and Localized Scleroderma)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  13. Thanks Everyone! All of your comments are very encouraging! When you try a recipe, please feel free to leave a comment - even if you change it some for your personal tastes - I'd like to hear what you did and so would others.

     

    Y'all are the best! :thank-you:


  14. Shifting priorities in multimorbidity: a longitudinal qualitative study of patient's prioritization of multiple conditions.

     

    The study demonstrates the impact of multiple conditions on many aspects of people’s illness management. Narratives illuminated how individual’s condition priorities changed at pivotal points and altered their engagement with self-management practices. This is influenced by contact with health professionals and how people framed illness and lifestyle changes. Rebecca L. Morris, Chronic Illness, February 22, 2011. (Also see: Living With Chronic Illness)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  15. The nonprofit International Scleroderma Network thanks Patricia Bucolo for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 05/03/11.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  16. miocean,

    I've read through all the post and really have nothing to add except for a lot of big hugs (((((((((((((((HUGS))))))))))) You definitely are suffering from overload so as the others have suggested, please drop some or all of the chores and commitments that "nice to do". You need time for YOU. You to put the wonder woman outfit in the closet. Also, please get a second opinion! I don't have any personal experiences with the doctors you mentioned, but from what I've seen on the internet and on this site, their both are scleroderma experts and very UP on the newest findings about scleroderma. I would think either of them would fit your needs.

     

    We are definitely here for you Darlin! Please keep us informed on how you are doing.


  17. Fudan, UTHealth introduce international network to fight against scleroderma.

     

    The network was established by faculty at The University of Texas Health Science Center at Houston (UTHealth) and Fudan University in Shanghai, China, and it will help clinicians compare treatments and researchers share data. The formation of the International Network of Scleroderma Clinical Care and Research (InSCAR) was announced at a Feb. 20 scientific symposium in Shanghai. News Medical, March 24, 2011. (Also see: Scleroderma Experts)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  18. The nonprofit International Scleroderma Network thanks S. Longiaru for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 05/03/11.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  19. Thanks everyone! I've always loved to cook and create new things so it's great sharing with others.

     

    Amanda, my poor kitty had a really bad bite which got infected. He had to wear the collar for a week. We had to keep him inside which was devastating for him and us since he is an outdoor cat. The collar drove him nuts so he drove us nuts as pay back. -:) Thankfully, the collar is now gone and hopefully never to return.


  20. I'm sure you've all heard about the health benefits of onions. Along with garlic they are considered anti-inflammatory and can improved cardiovascular health. Since inflammation is something that we all have to deal with on a daily basis, onions and garlic are two ingredients that I try to eat every single day. Luckily, I LOVE onions and garlic. This week's recipe, "Fennel Infused Onions", is an easy, breezy recipe that helps you get that dose of onion. I hope you try it.