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janey

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Posts posted by janey


  1. The nonprofit International Scleroderma Network thanks Aravindakumar Swaminathan for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 04/15/11.

     

    These items were posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.


  2. Cancer drug shows promise for treating scleroderma.

    While the drug's efficacy must be demonstrated in a Phase III trial, the gold standard for testing a drug, researchers are optimistic that Gleevec™ (imatinib) could potentially be a weapon against the chronic connective tissue disease for which a treatment has remained elusive. Phyllis Fisher. EurekAlert! 3/28/11. (Also see: Clinical Trials - Gleevec)

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  3. Those with chronic illness need to make financial plans early, advocate says.

     

    Simply having a will or even a list of end-of-life concerns isn't enough. People who are chronically ill need to maintain as much control over their affairs as they can and to trust that everything will go as planned during times when their condition temporarily makes them too sick to care for themselves. Kevin Turner, Jacksonville.com. 04/02/11. (Also see: Living with Chronic Illness)

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  4. When Moms Gets Ill – and Life Goes On.

     

    Living with a long-term illness can affect the entire family dynamic. Over the years, I’ve learned that stress management, eating healthy, and not over extending myself are the keys to managing my diseases. Diana M. Weber. Brandonpatch. 03/29/11. (Also see: Living with Chronic Illness)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  5. A Painter’s Disease.

     

    After his death in 1941, Paul Klee was diagnosed with scleroderma. He once wrote, "Everything vanishes around me, and works are born as if out of the void. Ripe, graphic fruits fall off. My hand has become the obedient instrument of a remote will." Medpage Today. Nancy Walsh. 02/25/11. (Also see: Paul Klee)

     

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  6. I have to give Shelley credit for this one. She's our insomnia queen and I'm close behind. I'm trying to actively apply these 4 rules but getting up when you can't sleep is hard. If it's cold, I don't want to crawl out of a warm bed. And then when I finally get to sleep around 4 am, to get up at the same time which isn't 9 am - is hard. Well, now that's it's warmer, I'm really going to try the getting out of bed when I can't sleep rule. When I can talk myself up - it works.


  7. Simple Rules for Better Sleep.

     

    This sounds way too good to be true: a quick, effective solution to the insomnia that plagues an estimated 15 to 30 percent of older adults — without drugs, without even needing to consult a physician. Paula Span. (Hcanorthhouston). Home Care. 03/23/22. (Also see: Sleep Disorders)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  8. Is Happiness Overrated?

     

    Some of the newest evidence suggests that people who focus on living with a sense of purpose as they age are more likely to remain cognitively intact, have better mental health and even live longer than people who focus on achieving feelings of happiness. Shirley S. Wang. The Wall Street Journal. 03/14/11. (Also see: Emotional Adjustment)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  9. HMO told woman she had to repay $1.2 million. Joan Gagliardi was stunned. An HMO official on the phone told her the company erred and was taking back the money it had paid for her costly medicine over almost two years. Bob LaMendola, Sun Sentinel. March 18, 2011.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  10. Sclero.org, including Sclero Forums, is going on Spring Break! Our server will be offline for a minimum of 8 hours over Saturday to Sunday, March 26-27, for server maintenance. We ask that no messages be posted in Sclero Forums after 7am Saturday, because those messages will likely not appear after the server is restored. Expect to see error messages such as "site not found" during this time. But be assured, by Monday morning we should be back, as fit and fine as ever and tackling scleroderma! Posted 03/21/11.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  11. Mindfulness therapy seen as aid to stress reduction.

     

    It’s a simple concept that appears to help people deal more effectively with depression, chronic illness or just the stress of everyday life. Monifa Thomas. Chicago Sun Times. 01/04/11. (Also see: Managing Stress and Emotional Adjustment)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  12. Specific anti-nuclear antibodies (ANA) in systemic sclerosis patients with and without skin involvement: an extended methodological approach.

     

    Standard algorithms for ANA identification lack sensitivity for the detection of SSc-associated ANA and should be supplemented with additional assays, especially in a clinical environment that has particular interest in SSc. The spectrum of SSc-associated ANA differs according to the presence or absence of skin involvement. Jens T. Van Praet, Rheumatology, February 17, 2011 (Also see: ANA in Systemic Sclerosis)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  13. The nonprofit International Scleroderma Network thanks Sherry Power for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org website. (Also see: Donate Now) Posted 03/15/11.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  14. The nonprofit International Scleroderma Network thanks Debra Sowa for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 03/15/11.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  15. Same thing happens to me, especially at night. Most nights I start on my left side with my left arm bent upwards. Invariably I'm woken up with a sharp pain in my elbow - all the way through the elbow from front to back. Same with the knees and hips. I can pretty much reduce the pain in the knees and hip by getting up and walking around a little. The elbow I have to just straighten out and hope the pain goes away. Sometimes I can anticipate the pain before going to bed (because of the day I've had), so I'll take a OTC pain pill. That seems to help me. Also,I tested out an eReader recently and after about 5 minutes my hand was stiff and hurting. No eReader for me.


  16. Sex Differences in autoimmune disease.

     

    Being female confers a greater risk of developing these diseases than any single genetic or environmental risk factor discovered to date. Understanding why would lead to an insight into the major pathways of disease pathogenesis and, secondly, it would likely lead to novel treatments which would disrupt such pathways. Rhonda Voskuhi. 7th Space Interactive. 01/04/11. (Also see: Causes of Scleroderma)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  17. The nonprofit International Scleroderma Network thanks Linda Sigmon for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now) Posted 03/14/11.

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  18. Girl allergic to hot, cold temperatures.

     

    Ten-year-old Jade Ellwanger is literally allergic to the cold. She has an uncommon autoimmune disorder known as heat/cold urticaria, which means her body has difficulty dealing with high and low temperatures. Mike Beitz. Toronto Sun. 02/02/11. (Also see: Urticaria)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  19. Surgery Saves Girl’s Face from Rare Disorder.

     

    Parry-Romberg syndrome, also known as progressive facial hemiatrophy, was first identified in the early 1800s. It usually starts in childhood and gets worse with time, and it seems to be more common in girls. Amanda Gardner. CNN Health. 02/25/11. (Also see: Parry-Romberg Syndrome)

     

    This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


  20. The nonprofit International Scleroderma Network thanks Aaron Ahonen for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. (Also see: Donate Now).

     

    These items were posted in the ISN Newsroom. Check the Newsroom every day for the latest scleroderma medical and support information.

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