Jump to content
Sclero Forums


  • Content Count

  • Joined

  • Last visited

About Kathi

  • Rank
    Bronze Member

Profile Information

  • Location
    Monee, IL
  1. Amanda, here in the States, there is a bra that you step into, there are NO wires or hooks to fool with! I have found it difficult to wear "regular" bras for a while now and have been quite thrilled with this bra. Hopefully you can find it online or something similar in your neck of the woods. It's like a sports bra, but has more support. Good luck with your search!
  2. Quiltfairy, I'm not sure if this will help much...but the diastolic number is the 'resting' number - The amount of pressure expended between each heart beat. You will want to discuss the reasons for this with your doctor. Good luck!
  3. I have not been online for a while, so imagine my surprise when one of the first posts I read is about Sherrill's passing. I am so saddened by this news. I loved reading her posts and looking at the pictures she posted. She had a wonderful heart. My condolences to her family and friends around the globe. Kathi
  4. Karen, My thoughts are with you during this difficult time. I cannot imagine what you must be going through. This forum is a wonderful place to heal. Hugs. Kathi
  5. Hello Kelly! I was diagnosed with UCTD in September of 2004. I was 43. My first symptoms started many years ago. I suffered from endometriosis from a very young age as well as IBS symptoms. Also, I kept injuring my joints doing "normal" things. I tore my rotator cuff while bowling. I tore the ligaments in my ankle by falling on a curb. I tore my meniscus when I turned around to answer a door. No one has that much bad luck with their joints, do they? No one took me seriously though, until I had a hives-like rash that lasted over 3 years. The general practitioner said chr
  6. Boy, can I relate! I always blamed the MTX because it seemed to start after the rheumatologist put me on it. I don't know about you guys, but my hair, head, and neck are the only places where I have this problem. I even thought perhaps the problem was "hot flashes", but my hormones are doing great - I have a wonderful primary doctor and am very lucky to have her. I've recently switched pain medications and the sweating seems to have subsided a bit. I hope it stays that way because I am to start Enbrel soon. Both my rheumatologist and pain doctor have mentioned that narcotic
  7. Hello Marie! I'm sorry to hear that you are experiencing so much joint pain. I am in the same boat, and the weather definitely plays a part with the amount of pain I experience daily. I was diagnosed with UCTD in September of 2004. Since then, I've been on Plaquenil, MTX, blood pressure meds, a pain med, and pain patches. I was on Humira, but my insurance is no longer covering that medication so I'm trying to decide if I want to try Enbrel or not. I have not been pain free since September of 2003 when my journey began. I hope you are able to get relief soon. Good luck!
  8. Dear Luvbnmom3... I just about fell off my chair when I read that you wake up with your hands in fists every morning! Mine do the same thing. And it scares the daylights out of me! I am afraid that one of these days I am not going to be able to straighten out my hands. While we are on this subject, my fingers look like raisins too - and heaven help me if I have to wash dishes, or wash my hands a lot....they get so tight it hurts just having fingers! And then it feels like someone is sticking me with hot needles! With the mention of elbows, I have a question... I work at the co
  9. Patty, The lidocaine can help with relieving pain for short periods. You have to remember 12 hours on and then 12 hours off. Unfortunately, I never got enough relief to stay with the lidocaine patches. I've tried everything from NSAIDs, over the counter creams, prescription creams, lidocaine patches, narcotic patches, another narcotic/opiate med, nerve blocks, and Humira. I currently take the following for UCTD: a strong pain patch, 50 micrograms every 48 hours, another strong pain med. 3-4 pills daily, MTX, Plaquenil, and Humira. For me, the Humira has been a lifesaver. I had
  10. Heidi, The registration process was easy. I'm not sure about posting and replying though. We'll have to see what happens! It looks great though! :unsure:
  • Create New...